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Research 101: A process for developing local guidelines for ethical research in heavily researched communities

机译:研究101:在受到大量研究的社区中制定本地伦理研究指南的过程

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摘要

BackgroundMarginalized communities often attract more than their share of research. Too often, this research benefits researchers disproportionately and leaves such communities feeling exploited, misrepresented, and exhausted. The Downtown Eastside (DTES) neighborhood of Vancouver, Canada, has been the site of multiple public health epidemics related to injection drug use as well as the site of much community-led resistance and struggle that has led to the development of cutting-edge harm reduction interventions (e.g., North America’s first supervised injection facility, Insite) and a strong sense of community organization. This background has made the DTES one of the most heavily researched communities in the world. Amidst ongoing experiences of unethical or disrespectful research engagement in the neighborhood, a collaboration between local academic researchers and community representatives developed to explore how we could work together to encourage more respectful, community-responsive research and discourage exploitative or disrespectful research.
机译:背景边缘化社区通常吸引的不仅仅是其研究份额。很多时候,这项研究不成比例地使研究人员受益,并使这些社区感到被剥削,虚假陈述和疲惫。加拿大温哥华市区东区(DTES)街区一直是与注射吸毒有关的多种公共卫生流行病的发生地点,也是许多社区主导的抵抗和斗争的地点,导致了尖端危害的发展减少干预措施(例如,北美第一个受监督的注射设备Insite)和强烈的社区组织意识。这种背景使DTES成为世界上研究最多的社区之一。在社区中不断进行不道德或不尊重研究的经验的过程中,地方学术研究人员与社区代表之间的合作得以发展,以探索我们如何共同努力,鼓励更多尊重,对社区敏感的研究,并阻止剥削性或不尊重研究。

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