系统化家庭管理对学龄期哮喘患儿生命质量的影响

摘要

Objective To explore the effects of systematic family management on quality of life of asthma children. Methods A total of 84 children with asthma aged from 7 to 14 from January to December 2009 were randomly divided into management group (n=44) and control group (n=40). Patients in control group were given routine discharge guidance and health education while children in management group were involved in family management system, and given one year of systematic family intervention from three aspects of daily live management, disease medical management and social psychological management. Chinese edition of Pediatric Asthma Quality of life Questionnaire (PAQLQ) was used to conduct quality of life evaluation in two groups when discharging and 12 months after discharge respectively. Results The aspects of quality of life: syndrome, activity and emotion in two groups indicated improvement one year after discharge and the score differences in two groups one year after discharge indicated statistic significance (P<0.05). Conclusion Systematic family management for asthma children is effective in improving their quality of life.%目的 探讨系统化家庭管理对哮喘患儿生命质量的影响.方法 选择2009年1-12月确诊为哮喘的84例7～14岁出院患儿,随机分为管理组44例,对照组40例.对照组按儿童哮喘护理常规予以出院指导和健康宣教;管理组纳入家庭管理系统,从日常生活管理、疾病医学管理、社会心理管理3个方面制定书面家庭管理计划,给予1年连续系统化的家庭干预.采用中国版哮喘儿童生命质量调查表(Pediatric Asthma Quality of life Questionnaire,PAQLQ),分别对两组出院时、出院后12个月作生命质量评估并作统计学分析.结果 出院时管理组与对照组症状维度、活动维度、情感维度的各项得分差异无统计学意义(P＞0.05),出院1年后,管理组与对照组各项目得分差异均有统计学意义(P＜0.05),管理组生命质量较对照组高(P＜0.05).结论 对哮喘患儿实施系统化家庭管理能有效提高患儿的生命质量.