癌症疼痛患者的主要照顾者心理体验的质性研究

摘要

目的：了解癌症疼痛患者的主要照顾者的真实心理体验，以关注照顾者心理健康，提高照顾者生命质量及对疼痛的应对能力。方法采用质性研究方法，应用半结构式访谈提纲深入访谈19名癌症疼痛患者的主要照顾者，使用Colaizzi分析程序分析资料，提炼主题和副主题。结果主要照顾者对癌症患者伴疼痛主要表现为担忧、害怕、紧张、着急、难受、心烦意乱、无助、无能为力等一系列负面心理，且癌性疼痛对照顾者的身心健康、生活均造成了一定影响。主要照顾者普遍存在疼痛相关知识欠缺及疼痛管理技能不足的现象。结论医护人员应关注主要照顾者的身心健康，完善支持系统，加强此类照顾者的健康教育和应对技能培训指导，从而减轻癌症患者疼痛，提高其生命质量。%Objective To understand the psychological experience of primary caregivers of patients with cancer-related pain,care to focus on caregivers psychological health, improve life quality and ability to cope with pain. Methods A qualitative, descriptive, semi-structured research were used in this study. Nineteen primary caregivers of cancer patients with cancer-related pain were in-depth interviewed. Colaizzi′s analytical method was adopted to analyze the data, which were then organized into themes and subthemes. Results The primary caregivers confronting cancer-related pain experienced a series of negative psychological changes, worry, fear, anxiety, vexation, sadness, helplessness and powerlessness, their physical and mental health, life were also affected .The primary caregivers were lack of pain related knowledge and pain management skills generally. Conclusion Medical staff should pay high attention to the psychology status of primary caregivers, to provide support, health education and skill training of pain coping strategies, which then might help relieve cancer patients′pain and in turn improve their quality of life.