Monitoring Written Communication Contribute to More Effective Decisions on AAC Devices during Rapid and Progressive Conditions of ALS

摘要

Persons with ALS face difficulties in communication due to rapid decline in speech and motor functions. Due to the rapid progression of the disease, intervention in AAC has to be in time and effective. In this paper we suggest that a better comprehension of written communication is important to evaluate communication progression and to decide on better approaches for AAC selection and delivery. We studied a group of ALS patients who used a tablet device with AAC software for text-to-speech communication. Internet communication was stimulated, learning periods and acceptance factors were observed. We monitored speech, handwriting and typing performances, in approximately 3 month-periods during a total period of 9 to 12 months. Results suggest that handwriting and typing functions should be monitored in order to better decide on AAC devices, namely those supported on tablet (touchscreen) or regular keyboard access, and find markers for introducing new interfaces for AAC access. Relevance of this study is to have a better understanding on predictors of acceptance and time markers to effectively manage AAC in a rapid and progressive process of degeneration.