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A new method of assessing ability to perform activities of daily living: design, methods and baseline data.

机译:一种评估日常生活活动能力的新方法:设计,方法和基准数据。

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PURPOSE: To describe study protocol and baseline characteristics of initial subjects. METHODS: Prospective study of 194 glaucoma patients. After informed consent, patients were evaluated using a third-generation, performance-based measure, Assessment of Disability Related to Vision (ADREV), nine tasks to simulate daily living activities; including: reading in reduced illumination, recognizing facial expression, detecting motion, recognizing street signs, locating objects, ambulating, placing pegs into different sized holes, telephoning, and matching socks. All patients completed clinical tests including visual acuity (Early Treatment Diabetic Retinopathy Study [ETDRS]), monocular and binocular visual fields, contrast sensitivity, stereopsis, and National Eye Institute's Visual Functioning Questionnaire (NEI VFQ-25). Main outcome measures are scores on subtests, total scores of ADREV and NEI VFQ-25. RESULTS: Mean age was 67.1 years; 51% were female, 55% were of European extraction. Seventy-two percent had open-angle glaucoma. Visual acuity (logMAR) ranged from -0.18 to 2.20, visual field mean defect ranged from -32.68 to 2.62, Binocular field score ranged from 5 to 100 and contrast sensitivity score ranged from 0 to 1.8. While ADREV score ranges from 0 (total disability) to 63 (no disability), total ADREV score ranged from 3.0 to 61.7. Total NEI VFQ-25 score ranged from 17.8 (low score indicates incapable) to 100 (high score indicates not hindered).CONCLUSIONS: Methodology of this study should provide information about disability caused by visual loss, specifically glaucoma, how difficulties in performing activities relate to standard clinical tests, and how they correlate to quality of life from patient's point of view. Subsequent papers will delineate findings and discuss their application.
机译:目的:描述初始受试者的研究方案和基线特征。方法:对194例青光眼患者进行前瞻性研究。知情同意后,使用基于性能的第三代测量方法“视力相关残疾评估”(ADREV)对患者进行评估,这是模拟日常生活活动的九项任务;包括:在低照度下阅读,识别面部表情,识别运动,识别路牌,定位物体,移动,将钉子插入不同大小的孔中,打电话和匹配袜子。所有患者均完成了临床测试,包括视敏度(早期糖尿病性视网膜病变研究[ETDRS]),单眼和双眼视野,对比敏感度,立体视,以及美国国立眼科学院的视觉功能问卷(NEI VFQ-25)。主要结局指标是子测验的分数,ADREV和NEI VFQ-25的总分数。结果:平均年龄为67.1岁。女性占51%,欧洲提取物占55%。 72%的人患有开角型青光眼。视敏度(logMAR)为-0.18至2.20,视野平均缺损为-32.68至2.62,双眼视野评分为5至100,对比度敏感度评分为0至1.8。尽管ADREV评分范围从0(完全残疾)到63(无残疾),但ADREV的总评分范围是3.0到61.7。 NEI VFQ-25的总评分范围为17.8(低分表示无能力)至100(高分表示无障碍)。结论:本研究的方法应提供有关视力丧失(尤其是青光眼)造成的残疾的信息,以及开展活动的难度如何标准的临床测试,以及从患者的角度来看它们如何与生活质量相关联。随后的论文将描述发现并讨论其应用。

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