...
首页> 外文期刊>Maternal and child health journal >Prevention of secondary conditions in fetal alcohol spectrum disorders: Identification of systems-level barriers
【24h】

Prevention of secondary conditions in fetal alcohol spectrum disorders: Identification of systems-level barriers

机译:预防胎儿酒精谱疾病的继发性疾病:确定系统水平的障碍

获取原文
获取原文并翻译 | 示例
   

获取外文期刊封面封底 >>

       

摘要

Fetal alcohol spectrum disorders (FASD) impact 2-5 % of the US population and are associated with life-long cognitive and behavioral impairments. Individuals with FASD have high rates of secondary conditions, including mental health problems, school disruptions, and trouble with the law. This study focuses on systems-level barriers that contribute to secondary conditions and interfere with prevention and treatment. Using a phenomenological methodology, semi-structured interviews and focus groups were conducted with parents of children with FASD and service providers. Data were analyzed using a framework approach. Participants emphasized the pervasive lack of knowledge of FASD throughout multiple systems. This lack of knowledge contributes to multi-system barriers including delayed diagnosis, unavailability of services, and difficulty qualifying for, implementing, and maintaining services. FASD is a major public health problem. Broad system changes using a public health approach are needed to increase awareness and understanding of FASD, improve access to diagnostic and therapeutic services, and create responsive institutional policies to prevent secondary conditions. These changes are essential to improve outcomes for individuals with FASD and their families and facilitate dissemination of empirically supported interventions.
机译:胎儿酒精频谱障碍(FASD)影响了美国人口的2%至5%,并与终身的认知和行为障碍相关。患有FASD的人患有二级疾病的比率很高,包括精神健康问题,学校中断和法律问题。这项研究的重点是造成继发性疾病并干扰预防和治疗的系统级障碍。使用现象学方法,与患有FASD的儿童的父母和服务提供者进行了半结构式访谈和焦点小组讨论。使用框架方法分析数据。与会者强调了在多个系统中普遍缺乏FASD知识。知识的缺乏导致了多系统障碍,包括延迟诊断,服务不可用以及资格,实施和维护服务的困难。 FASD是主要的公共卫生问题。需要使用公共卫生方法进行广泛的系统更改,以提高对FASD的认识和了解,改善对诊断和治疗服务的访问,并制定响应迅速的机构政策来预防继发性疾病。这些变化对于改善患有FASD的患者及其家人的结局并促进基于经验的干预措施的传播至关重要。

著录项

相似文献

  • 外文文献
  • 中文文献
  • 专利
获取原文

客服邮箱:kefu@zhangqiaokeyan.com

京公网安备:11010802029741号 ICP备案号:京ICP备15016152号-6 六维联合信息科技 (北京) 有限公司©版权所有
  • 客服微信

  • 服务号