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Complementary and alternative approaches used by parents of children with epilepsy on epilepsy management

机译:癫痫患儿父母在癫痫治疗中使用的补充和替代方法

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The aim of this study was to determine the complementary and alternative approaches used by parents of children with epilepsy on epilepsy management This descriptive study included a total of 304 parents of children with epilepsy aged between 0 and 18 years evaluated at the Pediatric Neurology Clinic of Akdeniz University Hospital in Turkey between January and May 2013. Data were collected by using a questionnaire developed by the researchers. It was determined that all the parents use complementary and alternative approaches for their children with epilepsy, and the most common approaches are praying (99.3%); keeping their children away from the effects of smoking (79.8%); feeding their children walnuts (79.6%), butter (59.2%), and bone marrow (58.6%); providing their children with good quality sleep (58.6%); and enabling their children to play games (51%). The approaches commonly applied during seizures include praying (96.2%), comforting their children in their arms and showing affection (55.6%), waiting for seizures to finish at home (45.7%), and laying children on their side (41.1%). Of parents, 98% stated that alternative approaches enable them to control their child's seizures, 100% said that alternative approaches have no adverse effect, and 98.4% stated that they will continue to use these approaches. The children's approaches to cope with epilepsy included looking after pets (72.7%), listening to music (70.1%), watching television (64.5%), playing games (55.3%), praying (51%), and spending time with friends (48.7%). Most of the approaches used by parents and children with epilepsy for the management of illness are determined to consist of complementary approaches that may contribute to management of epilepsy. Knowing the approaches of parents and children with epilepsy that could adversely affect disease management is important for educating parents and children to avoid these potentially harmful interventions.
机译:这项研究的目的是确定癫痫患儿父母在癫痫治疗中使用的补充和替代方法。该描述性研究包括总共304名0至18岁的癫痫患儿父母在阿克德尼兹儿童神经病学诊所进行评估土耳其大学医院,2013年1月至5月。使用研究人员开发的问卷收集数据。已确定所有父母对患有癫痫病的孩子使用补充和替代方法,最常见的方法是祈祷(99.3%);使他们的孩子远离吸烟的影响(79.8%);给孩子喂核桃(79.6%),黄油(59.2%)和骨髓(58.6%);为孩子提供优质的睡眠(58.6%);并使他们的孩子玩游戏(51%)。癫痫发作时常用的方法包括祈祷(96.2%),安慰孩子的手臂并表现出爱意(55.6%),等待癫痫发作在家中(45.7%)以及将孩子放到一边(41.1%)。在父母中,有98%的人说其他方法可以控制孩子的癫痫发作;有100%的人说其他方法没有不良影响,而98.4%的人说他们将继续使用这些方法。孩子们应对癫痫的方法包括照顾宠物(72.7%),听音乐(70.1%),看电视(64.5%),玩游戏(55.3%),祈祷(51%)和与朋友共度时光( 48.7%)。父母和患有癫痫病的孩子用于治疗疾病的大多数方法被确定为可能有助于癫痫病治疗的补充方法。了解父母和儿童癫痫病可能对疾病管理产生不利影响的方法,对于教育父母和儿童避免这些潜在有害的干预措施非常重要。

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