Quality of life after ileo-anal pouch formation: patient perceptions

摘要

This article describes a qualitative study, exploring the experiences of six individuals who have undergone an ileo-anal pouch formation and their subsequent lifestyle after this reconstructive surgical procedure. The aim of this study was to ascertain whether individuals who had an ileo-anal pouch believed themselves to have a good quality of life and a lifestyle that was not compromised as a result of surgery. The themes that emerged through the interviews were common to several participants and reflected their life, the decisions they were required to make and the resources available in order for them to do so. The outcome of this study, using a phenomenological approach, highlights that some individuals restrict their lifestyle, while others do not and are prepared to live with the consequences. The literature overwhelmingly concludes that the ileo-anal pouch procedure is a safe and efficient procedure with high patient satisfaction and good functional outcome, which should be recommended as a long-term option for ulcerative colitis and familial adenomatous polyposis sufferers. However, some patients curtail their lifestyle by restricting diet, altering meal patterns and minimising social activities to maintain day-to-day living with an ileo-anal pouch.