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Culture, identity, strength and spirituality: A qualitative study to understand experiences of African American women breast cancer survivors and recommendations for intervention development

机译:文化,身份,力量和灵性:了解非洲裔美国女性乳腺癌幸存者经验和干预发展建议的定性研究

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Abstract Objective Despite advancements in cancer treatment, racial disparities in breast cancer survival persist, with African American women experiencing lower survival rates and poorer quality of life than non‐Hispanic White women. Using a social cognitive model of restorative well‐being as a framework, this qualitative study sought: (a) to examine strength‐ and culture‐related factors associated with African American female breast cancer survivors’ cancer coping and post‐treatment experiences and (b) to make recommendations for culturally sensitive intervention. Methods Eight focus groups occurred with a total of 40 local African American breast cancer survivors. Focus groups were audiotaped and transcribed verbatim. Framework analyses were used to identify themes. NVivo qualitative analysis software‐managed data. Results Two major themes emerged from the focus group discussions: (a) God enables breast cancer survivorship and works every day in our lives and (b) the healthiest thing about us is that we are strong African American women. Recommendations for intervention planning and implementation were made towards intervention structure, content development and language framing in a local context. Conclusion Findings suggest a need for community‐based participatory survivorship interventions that are culturally and spiritually consonant and peer‐based. Such interventions may respond to the cancer‐related and personal needs of the target population.
机译:摘要目的尽管癌症治疗进展,乳腺癌存活率的种族差异持续存在,非洲裔美国妇女经历较低的生存率和较差的生活质量,而不是非西班牙裔白人女性。使用恢复性福祉的社会认知模型作为框架,这个定性研究寻求:(a)检查与非洲裔美国女性乳腺癌幸存者癌症应对和治疗后经验相关的力量和文化相关因素和(b )提出提出文化敏感干预的建议。方法发生八个焦点小组,共有40个本地非洲裔美国乳腺癌幸存者。焦点小组是录音带并翻译逐字。框架分析用于识别主题。 NVIVO定性分析软件管理数据。结果焦点小组讨论中出现了两个主要主题:(a)上帝能够在我们的生活中每天都能救援,并且(b)关于我们的最健康的事情是我们是强大的非洲裔美国女性。干预计划和实施的建议是在当地背景下的干预结构,内容开发和语言框架。结论调查结果表明,需要在文化和精神上辅音和同行的社区参与生存干预措施。这种干预措施可能会响应目标人口的癌症相关和个人需求。

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