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Meaningful Ways of Understanding and Measuring Change for People with Borderline Personality Disorder: A Thematic Analysis

机译:具有边缘人格障碍的人的有意义的理解和衡量变革方式:主题分析

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Background: The effective treatment of Borderline Personality Disorder (BPD) presents healthcare providers with a significant challenge. The evidence base remains limited partially due to a lack of professional consensus and service user involvement regarding ways of measuring change. As a result, the limited evidence that is available draws on such a wide range of outcome measures, that comparison across treatment types is hindered, maintaining a lack of clarity regarding the clinical needs of this group. Aims: This investigation aimed to follow the National Institute of Clinical Excellence (NICE, 2009) research recommendations by asking service users about meaningful change within their recovery. This forms a starting point for the future development of a tailored outcome measure. Method: Fifteen service users with a diagnosis of BPD participated in three focus groups across two specialist Personality Disorder services. The focus groups were analysed using Thematic Analysis. Results: Two superordinate themes were synthesized from the data: (1) recovery to what?: ‘How do you rewrite who you are?’; and (2) conditions for change. Each superordinate theme further consisted of three subordinate themes which elucidated the over-arching themes. Conclusion: This investigation highlights the complex nature of measuring change in people who have received a BPD diagnosis. Further research is needed to develop meaningful ways of measuring change according to the needs and priorities of people with BPD.
机译:背景:边缘人格障碍(BPD)的有效治疗呈现出质量挑战的医疗保健提供者。由于缺乏专业的共识和服务用户参与衡量变革的方法,证据基础仍然是有限的。因此,可用的有限证据可以吸引这种广泛的结果措施,其中妨碍了治疗类型的比较,维持缺乏关于该组的临床需求的清晰度。目的:这项调查旨在遵循国家临床卓越研究所(尼斯,2009年)的研究建议,通过向服务用户提出有意义的变化,在他们的康复内有意义。这形成了未来发展定制结果措施的起点。方法:十五型服务用户诊断BPD参加了三个专家人格障碍服务的三个焦点小组。使用主题分析分析焦点组。结果:从数据中合成了两个上级主题:(1)恢复到什么?:'你如何重写你是谁?'; (2)变革条件。每个上级主题进一步包括三个从属主题,阐明过拱形主题。结论:这项调查突出了收到BPD诊断的人们衡量变化的复杂性。需要进一步的研究来根据BPD人民的需求和优先事项制定有意义的衡量变革方式。

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