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Using an E-health intervention to promote the health of cancer survivors with preexisting disabling conditions

机译:使用电子卫生干预措施以促进患有原有残疾状况的癌症幸存者的健康

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Although there has been research on the use of e-health for cancer patients and those living with disabilities, no interventions focus on cancer survivors who had a disabling condition prior to their cancer. Therefore, we developed and piloted the feasibility of the online health-promotion program LiveAble. Based on a theoretically driven health-promotion program previously shown to be effective among people with various chronic conditions, LiveAble was adapted to be an e-heath intervention for cancer survivors with preexisting disabilities. Eleven cancer survivors reviewed LiveAble and provided feedback. The participants' average age was 54 years. Most had neuromuscular impairments prior to their cancer; about half were breast cancer survivors. Average scores on the Self-efficacy for Health Practices Scale increased. Participants rated LiveAble useful, attractively presented, and relevant to people with disabilities. Their feedback also suggested areas for change, such as a system that was easier to navigate and more individualized. Only 51% of these participants agreed that LiveAble motivated them to take action to improve their health. To turn information into action, participants may need additional assistance and encouragement. Although preliminary results were promising, future efforts should determine the efficacy of LiveAble with larger and more diverse groups of survivors.
机译:尽管已经对癌症患者和残障人士使用电子医疗进行了研究,但没有干预措施针对癌症幸存者,这些幸存者在患癌症前就处于残疾状态。因此,我们开发并试行了在线健康促进计划LiveAble的可行性。基于先前证明在各种慢性病患者中有效的,基于理论的健康促进计划,LiveAble被改编为针对先前患有癌症的癌症幸存者的电子健康干预措施。十一名癌症幸存者回顾了LiveAble并提供了反馈。参与者的平均年龄为54岁。大多数人在患癌症前就有神经肌肉损伤。大约一半是乳腺癌幸存者。健康实践自我效能量表的平均分数增加。与会人员对LiveAble进行了评估,认为其有用,有吸引力且与残疾人相关。他们的反馈意见还提出了需要改进的领域,例如更易于导航和更个性化的系统。这些参与者中只有51%同意LiveAble能够激励他们采取行动改善健康状况。为了将信息转化为行动,参与者可能需要更多的帮助和鼓励。尽管初步结果令人鼓舞,但未来的工作应确定LiveAble对更大,更多样化的幸存者群体的疗效。

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