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首页> 外文期刊>Journal of child neurology >The US Network of Pediatric Multiple Sclerosis Centers: Development, Progress, and Next Steps
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The US Network of Pediatric Multiple Sclerosis Centers: Development, Progress, and Next Steps

机译:美国小儿多发性硬化症中心网络:发展,进展和下一步

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摘要

Multiple sclerosis and other demyelinating diseases in the pediatric population have received an increasing level of attention by clinicians and researchers. The low incidence of these diseases in children creates a need for the involvement of multiple clinical centers in research efforts. The Network of Pediatric Multiple Sclerosis Centers was created initially in 2006 to improve the diagnosis and care of children with demyelinating diseases. In 2010, the Network shifted its focus to multicenter research while continuing to advance the care of patients. The Network has obtained support from the National Multiple Sclerosis Society, the Guthy-Jackson Charitable Foundation, and the National Institutes of Health. The Network will continue to serve as a platform for conducting impactful research in pediatric demyelinating diseases of the central nervous system. This article provides a description of the history and development, organization, mission, research priorities, current studies, and future plans of the Network.
机译:小儿人口中的多发性硬化症和其他脱髓鞘疾病受到了临床医生和研究人员的越来越多的关注。这些疾病在儿童中的发病率较低,因此需要多个临床中心参与研究工作。小儿多发性硬化症中心网络最初于2006年成立,旨在改善患有脱髓鞘疾病的儿童的诊断和护理。 2010年,该网络将重点转移到多中心研究上,同时继续提高患者的护理水平。该网络已获得国家多发性硬化症学会,Guthy-Jackson慈善基金会和美国国立卫生研究院的支持。该网络将继续作为开展有影响的中枢神经系统小儿脱髓鞘疾病研究的平台。本文介绍了网络的历史和发展,组织,任务,研究重点,当前研究和未来计划。

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