Patient and public involvement in developing patient-reported outcome measures: Indispensable, desirable, challenging

摘要

In their article 'Patient and public involvement in patient-reported outcome measures: evolution not revolution,' Staniszewska et al. review the potentials for patient and public involvement (PPI) in the development, application, evaluation, and interpretation of patient-reported outcome measures (PROMs).[1] They argue that the development of PROMs should embrace more collaborative forms of PPI with patients as partners in the research process. This should ensure the acceptability, relevance, and quality of the research. While many of the messages presented in their article can be endorsed, it needs to be emphasized that PPI is not a panacea: in some areas evidence supports PPI, others relate to more innovative and perhaps challenging applications.