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Case Study of the Vulnerabilities that Children with Autism Spectrum Disorder have in Education: The Importance of Early Detection

机译:自闭症谱系障碍儿童在教育中的脆弱性的案例研究:早期发现的重要性

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Currently in our society, children with Autism Spectrum Disorder (ASD) can be considered a vulnerable group because of the integration issues they experience in education. This paper presents a report of research study conducted in the province of Jaen. The purpose of this study was to: Identify the difficulties experienced by family members to detect and diagnose the disorder; analyse what influence the socio-economic context of the family has in the detection and obtaining of an early diagnosis and, establish the satisfaction level of the response received from their educational context. The method used was a case study that included in-depth interviews. The sample was established by purposive sampling. The participants were thirty mothers and/or fathers of children with ASD, who were aged between five and seventeen, 93.3% were boys. The main results obtained can be grouped into three broad areas: 1) Late Diagnosis: The families received the first diagnosis for their child aged between 18 and 36 months. 2) The family's socioeconomic context: Regardless of the family's income, they all agreed that having a member with ASD in the family requires significant economic resources to ensure the child receives the best care possible. 3) The Satisfaction with the educational centres: They showed a general approval although they were aware of the shortcomings of the educational system. In conclusion it is necessary to implement a number of challenges in the process of early detection and methods of educational intervention.
机译:当前在我们的社会中,由于自闭症谱系障碍(ASD)的孩子在教育中遇到融合问题,因此可以将其视为弱势群体。本文介绍了在哈恩省进行的研究报告。本研究的目的是:确定家庭成员发现和诊断疾病的困难;分析家庭的社会经济环境对发现和获得早期诊断有什么影响,并建立从他们的教育环境中得到的回应的满意度。使用的方法是一个案例研究,其中包括深度访谈。通过有针对性的采样建立样本。参加者为30名患有ASD的母亲和/或父亲,年龄在5至17岁之间,男孩为93.3%。获得的主要结果可以分为三个主要方面:1)晚期诊断:这些家庭对18至36个月大的孩子进行了首次诊断。 2)家庭的社会经济背景:不管家庭的收入如何,他们都同意在家庭中拥有ASD成员需要大量的经济资源,以确保孩子得到最好的照顾。 3)对教育中心的满意度:尽管他们意识到教育系统的缺点,但得到了普遍的认可。总之,有必要在早期发现和教育干预方法中实施许多挑战。

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