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Pilot study of an energy conservation education program delivered by telephone conference call to people with multiple sclerosis

机译:通过电话会议向多发性硬化症患者提供的节能教育计划的初步研究

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Objective: To modify and pilot test a face-to-face group energy conservation education program for delivery by group telephone teleconference to people with multiple sclerosis. Participants: 29 community dwelling individuals with multiple sclerosis. Methods: The first phase of the study involved the modification of an existing energy conservation education program to accommodate teleconference delivery. The second phase involved a pilot test of the intervention using a basic pre/post intervention design. Licensed occupational therapists delivered the intervention. Outcome Measures: Fatigue severity, fatigue impact, health related quality of life, self-efficacy for performing energy conservation strategies, and use of energy conservation behaviors. Findings: Using an a priori α of p=0.10, paired t-tests found significant reductions in fatigue severity, fatigue impact, and improvements in the following aspects of quality of life: bodily pain and general health. Average effect size was 0.31. The most used energy conservation strategies after the course were simplifying activities, adjusting priorities, changing body position, resting, and planning the day to balance work and rest. Conclusion: The pilot study supports on-going development and testing of energy conservation education delivered by teleconference to people with multiple sclerosis.
机译:目的:修改和试点面对面的团体节能教育计划,以通过电话会议向多发性硬化症患者进行交付。参加者:29名多发性硬化症社区居民。方法:研究的第一阶段涉及修改现有的节能教育计划,以适应电话会议的交付。第二阶段涉及使用基本的前/后干预设计对干预进行先导测试。有执照的职业治疗师进行了干预。成果指标:疲劳程度,疲劳影响,健康相关的生活质量,执行节能策略的自我效能以及使用节能行为。研究结果:使用p = 0.10的先验α,配对t检验发现,疲劳强度,疲劳影响得到明显降低,并且生活质量的以下方面有所改善:身体疼痛和总体健康。平均效果大小为0.31。课程结束后,最常用的节能策略是简化活动,调整优先级,改变身体姿势,休息以及计划一天以平衡工作和休息。结论:初步研究支持通过电话会议为多发性硬化症患者开展的节能教育的持续开发和测试。

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