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An exploratory case study of the impact of ambient biographical displays on identity in a patient with Alzheimer's disease

机译:探索性案例研究,周围的传记显示对阿尔茨海默氏病患者身份的影响

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One of the most troubling symptoms of Alzheimer's disease is the loss of the patient's sense of identity. This loss complicates relationships, increases apathy, and generally impedes quality of life for the patient. We describe a novel in-home ambient display called Biography Theatre that cycles through music, photographs, movies, and narratives drawn from the patient's past and current life. We conducted an exploratory case study with an 84-year-old male with moderate-stage Alzheimer's disease (Mr H). The study consisted of three phases: a baseline phase, a phase wherein autobiographical materials were collected and discussed, and a phase wherein the display was deployed in the home. The patient demonstrated improvement on standardised tests of apathy and positive self-identity, but did not improve on tests of autobiographical memory, anxiety, depression, and general cognition. We also report on caregiver reactions to the intervention and how the display helped them cope with and reinterpret their loved one's condition. This work suggests that interdisciplinary work involving “off the desktop” computing technologies may be a fruitful way to provide rehabilitative benefit for individuals with Alzheimer's disease.
机译:阿尔茨海默氏病最令人困扰的症状之一就是患者失去了认同感。这种损失会使人际关系复杂化,增加冷漠感,并通常会妨碍患者的生活质量。我们描述了一种称为Biography Theater的新颖的室内环境显示器,该显示器在音乐,照片,电影和从患者过去和现在的生活中提取的叙述之间循环。我们对一名84岁患有中度阿尔茨海默氏病(Mr H)的男性进行了探索性案例研究。该研究包括三个阶段:基线阶段,收集和讨论自传材料的阶段以及在家里部署显示器的阶段。该患者表现出对冷漠和积极的自我认同的标准化测试有所改善,但对自传记忆,焦虑,抑郁和一般认知的测试却没有改善。我们还报告护理人员对干预的反应,以及显示器如何帮助他们应对和重新诠释他们所爱的人的状况。这项工作表明涉及“非桌面”计算技术的跨学科工作可能是为患有阿尔茨海默氏病的患者提供康复治疗的有效途径。

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