Effective Life Management in Parents of Children with Disabilities: A Cross-National Extension

摘要

This study is part of an on-going research program exploring life management in families of children with a variety of disability characteristics and age ranges. Scorgie, Wilgosh, and McDonald (1996) used a qualitative, interview methodology to identify effective strategies, qualities, and transformational outcomes for parents of children with disabilities who had been identified, by service agencies, as having effective life management strategies. A larger group of parents, from similarly identified, effectively managing families, was surveyed (Scorgie, Wilgosh, & McDonald, 1997), using the Life Management Survey (LMS) developed from the nine themes found in the qualitative study, supporting the original findings. A replication of the LMS survey study (Wilgosh, Scorgie, & Fleming, 2000) confirmed the previous findings with parents who were not preselected as effective life managers. In fact, the consistency across the three Canadian studies supported examination of family life management cross-nationally. The present study shows that Catholic Italian parents of children with disabilities have patterns of effective life management strategies, parent qualities, and parent transformational outcomes which characterize them and are similar to those of the Canadian parents. However, in the Italian study, some differences were found related to type of disability, emphasizing the need for qualified professional support, guidance and counselling, focused on the unique needs of each family, as related to the child's disability needs.