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From the dream to reality: experience of mothers of children with disabilities

机译:从梦想到现实:残疾儿童母亲的经历

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This study aims to show signs of emotional distress experienced by mothers of children with disabilities. Comprehensive and interpretative study, conducted in the city of Timbaúba/Pernambuco/Brazil, with six mothers of children with disabilities. The empirical material was produced by interviews, following the premises of the Oral History proposed by Bom Meihy and then interpreted in the light of the thematic analysis technique. The mothers' narratives are marked by feelings of ambiguity, neglect, sadness, denial, guilt, self-pity, self-contempt and frustrations. The stories revealed that mothers have the power to overcome and are able to adapt themselves to the experience of taking care of a disabled child. The narratives provided reflections on the complexity of being a mother, in particular, the issue of disability, suggesting the need for multidisciplinary actions aimed at personal empowerment and autonomy in caring for a child, with a view to the child's rehabilitation and inclusion in society.
机译:这项研究旨在显示残疾儿童的母亲所经历的情绪困扰的迹象。在Timbaúba/ Pernambuco /巴西进行了全面的解释性研究,有六名残疾儿童母亲。根据Bom Meihy提出的《口述史》的前提,通过访谈产生了经验材料,然后根据主题分析技术对其进行了解释。母亲的叙事以模棱两可,疏忽,悲伤,否认,内,自怜,自卑和挫败感为特征。这些故事表明,母亲有克服困难的能力,能够适应照料残疾儿童的经历。这些叙述反映了作为母亲的复杂性,特别是残疾问题,这表明需要采取多学科行动,以个人的能力和自主权照顾孩子,以期使孩子康复并融入社会。

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