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The Perception of Family Function by Adolescents with Epilepsy in a Rural Nigerian Community

机译:尼日利亚农村社区癫痫青少年对家庭功能的认识

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The family plays a significant role in epilepsy management in sub-Saharan Africa and how this role is perceived by persons with epilepsy could influence epilepsy outcomes. The objective of the study was to assess perception of family function by adolescents with epilepsy (AWE). The sociodemographic and epilepsy characteristics of AWE in a rural Nigerian community were assessed and the Family APGAR tool was used in assessing their perception of satisfaction with family functioning. Adolescents (n=1708) constituted 26% of the community’s population and 18 (10.5/1000) had epilepsy. The AWE age range was 11–19 years (mean16.7±2.6years) with a male preponderance (15, 83.3%). The family was the only source of care. Family dysfunction (Family APGAR Score <7) was indicated by 15 (83.3%) of the AWE. The strongest perception of family function was in adaptability while the weakest was with growth. The indication of family dysfunction was significant (P<0.05) in the older (age 14–19 years) AWE when compared with the younger AWE (11–13 years) in the study. Most of the AWE indicated living in a dysfunctional family setting. The study highlights the need to address the role of the family in the provision of comprehensive epilepsy care.
机译:家庭在撒哈拉以南非洲的癫痫病管理中起着重要作用,癫痫病患者如何看待这一角色可能会影响癫痫病的预后。这项研究的目的是评估癫痫青少年(AWE)对家庭功能的认识。评估了尼日利亚农村社区中AWE的社会人口统计学和癫痫特征,并使用Family APGAR工具评估他们对家庭功能满意度的看法。青少年(n = 1708)占该社区人口的26%,其中18(10.5 / 1000)人患有癫痫病。 AWE年龄范围为11-19岁(平均16.7±2.6岁),其中男性占多数(15岁,占83.3%)。家庭是唯一的照料来源。 15名(83.3%)的AWE表示家庭功能障碍(APGAR得分<7)。对家庭功能的最强烈的看法是适应能力,而最弱的是对成长。与研究中较年轻的AWE(11-13岁)相比,年龄较大(14-19岁)的AWE有明显的家庭功能障碍迹象(P <0.05)。大多数AWE表示生活在功能失调的家庭环境中。该研究强调需要解决家庭在提供全面癫痫治疗中的作用。

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