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The experience of being a partner to a spinal cord injured person: A phenomenological-hermeneutic study

机译:成为脊髓受伤者的伴侣的经验:现象学,诠释学研究

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This qualitative focuses on the personal experiences of partners to a spinal cord injured person. Using a Ricoeurian phenomenological-hermeneutic approach, we analysed seven partners’ narratives 1 and 2 years after their partner's injury. The study revealed how the injury was experienced from the partners’ perspective through the aftermath. In the acute phase after the injury, partners also felt harmed, and support was needed in relation to their own daily activities, eating, resting, and managing distress. During the institutionalized rehabilitation, partners felt torn between supporting the injured partner and the demanding tasks of everyday life outside the institution. After discharge, partners struggled for the injured partner to regain a well-functioning everyday life and for reestablishing life as a couple. The partner struggled to manage the overwhelming amount of everyday tasks. Some sought to reestablish their usual functions outside the family, whereas others focused on establishing a new life together. The partners experienced much distress and appreciated the support they got, but felt that they were mainly left to manage the difficult process on their own.
机译:这种定性集中于伴侣对脊髓受伤者的个人经历。我们采用了黎科(Ricoeurian)现象学-诠释学的方法,分析了七名伴侣受伤后1年和2年的叙述。这项研究揭示了从伴侣的角度来看,直到事后受伤的过程。在受伤后的急性期,伴侣也感到受伤,需要在日常活动,饮食,休息和控制痛苦方面提供支持。在制度化的康复过程中,伴侣在支持受伤的伴侣与机构外部的苛刻工作之间感到痛苦。出院后,伴侣们为受伤的伴侣而奋斗,以恢复正常运转的日常生活并重建一对夫妻的生活。合作伙伴努力管理大量的日常任务。一些人试图在家庭之外重新建立其平常的职能,而另一些人则致力于共同建立新的生活。合作伙伴感到非常痛苦,并感谢他们获得的支持,但他们觉得主要是由他们自己来管理困难的过程。

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