Parental satisfaction with follow-up services for children with major anatomical congenital anomalies

M. Van Dijk; M. J. Poley; S. J. Gischler; P. Mazer; H. IJsselstijn; D. Tibboel; J. M. Latour

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Parental satisfaction with follow-up services for children with major anatomical congenital anomalies

机译：父母对患有重大解剖先天性异常的儿童的随访服务感到满意

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Background Since 1999 a multidisciplinary follow-up programme for parents and children with major anatomical congenital anomalies is in place in our hospital, run by a dedicated team. The aim of the present study was to evaluate the services of this team from a parental perspective.

机译：背景自1999年以来，我们的医院由专职团队负责为患有严重先天性解剖异常的父母和孩子制定了多学科随访计划。本研究的目的是从父母的角度评估该团队的服务。

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来源
《Child: Care, Health and Development》 |2010年第1期|p.101-109|共9页
作者
M. Van Dijk; M. J. Poley; S. J. Gischler; P. Mazer; H. IJsselstijn; D. Tibboel; J. M. Latour;
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作者单位

Department of Pediatric Surgery, Erasmus MC-Sophia Children's Hospital,;

Institute for Medical Technology Assessment, Erasmus University, and;

Department of Pediatrics, University Medical Center, Erasmus MC-Sophia Children's Hospital, Rotterdam, The Netherlands;

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正文语种 eng
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关键词
congenital anomalies; long-term follow-up; paediatric intensive care; parental satisfaction; quality of care;

机译：先天性异常;长期随访;儿科重症监护;父母满意度;护理质量;

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1. Parental satisfaction with follow-up services for children with major anatomical congenital anomalies. [J] . van Dijk M, Poley MJ, Gischler SJ, Child: care, health and development . 2010,第1期

机译：父母对患有重大解剖先天性异常的儿童的随访服务感到满意。
2. Motor-function and exercise capacity in children with major anatomical congenital anomalies: an evaluation at 5 years of age. [J] . van der Cammen van Zijp MH, Gischler SJ, Mazer P, Early human development . 2010,第8期

机译：患有重大解剖先天性异常的儿童的运动功能和运动能力：5岁时进行的评估。
3. Post-acute service utilisation and parental satisfaction with health care services after mild traumatic brain injury in children and adolescents. [J] . Petersen C, Scherwath A, Kruithoff E, Brain injury: BI . 2006,第3期

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4. Impacts of Parental Gender and Attitudes on Children’s School Travel Mode and Parental Escort Behavior [C] . Hsin-Ping Hsu, Jean-Daniel Saphores Transportation Research Board Annual meeting . 2013

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5. Parental satisfaction of permitted play for hospitalized children receiving child life services [D] . Dura, Jennifer J. 2009

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6. Major congenital anomalies in children born to women with systemic lupus erythematosus [O] . E Vinet, CA Pineau, AE Clarke, 2012

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机译：患有先天性解剖异常的儿童；五年的肖像追踪
8. From Early Involvement with Child Welfare Services to School Entry: A 5- to 6-Year Follow-Up of Infants in the National Survey of Child and Adolescent Well-Being. With Tables of 5- to 6-Year Follow-Up Results for Children Aged 1 to 4 at Baseline [R] . 2008

机译：从早期参与儿童福利服务到入学：在全国儿童和青少年福祉调查中对婴儿进行5至6年的随访。以基线为1至4岁儿童的5至6年随访结果表

Parental satisfaction with follow-up services for children with major anatomical congenital anomalies

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