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Sense making in complex health situations: Virtual health communities as sources of information and emotional support

机译:复杂健康状况下的感官创造:虚拟健康社区作为信息和情感支持的来源

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Purpose Using a sense making approach, the purpose of this paper is to examine the role that virtual health communities play as a source of informational and social support for pregnant diabetic women. The paper helps to understand how women suffering from a critical medical condition (i.e. diabetes during pregnancy and birth) manage a complex health situation. Design/methodology/approach The data sample consisted of 507 posts collected from a virtual health community for diabetic pregnant women. Data were analysed deductively looking for different expressions of normality and different types of health information about diabetes. Findings Content analysis revealed four themes that reflect the process that diabetic women go through from their attempts to conceive through pregnancy and birth. The findings show that for women dealing with a chronic illness such as diabetes, the breakdown of normal was the beginning of the pregnancy that prompted a new range of informational and emotional needs. The members of the community negotiated a socially constructed sense of normality and tried to empower other members with a new sense of normal by sharing information about their births. The findings also showed that members of the community disclosed personal health information to elicit medical information, advice and social support from other members. Originality/value The study highlighted the significance of sense-making processes in managing complex health situations and the value of virtual communities as sources of information and social support as to resolve discontinuities in the management of their illnesses.
机译:目的本文采用一种有意义的方法,旨在检验虚拟健康社区在为孕妇糖尿病妇女提供信息和社会支持方面所起的作用。该论文有助于了解患有严重疾病(例如怀孕和分娩期间的糖尿病)的妇女如何应对复杂的健康状况。设计/方法/方法数据样本由507个帖子组成,这些帖子是从一个虚拟的健康社区收集的,用于糖尿病孕妇。对数据进行演绎分析,以寻找不同的正常表达和有关糖尿病的不同类型的健康信息。调查结果内容分析揭示了四个主题,这些主题反映了糖尿病妇女从怀孕到生育的尝试过程。研究结果表明,对于患有慢性疾病(例如糖尿病)的女性,正常的崩溃是怀孕的开始,这引发了一系列新的信息和情感需求。社区成员协商了一种社会建构的正常感,并试图通过共享有关其出生的信息来赋予其他成员新的正常感。调查结果还表明,社区成员公开了个人健康信息,以寻求其他成员的医学信息,建议和社会支持。原创性/价值这项研究强调了理性决策过程在管理复杂健康状况中的重要性,以及虚拟社区作为解决疾病管理不连续性的信息和社会支持来源的价值。

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