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A shared respite—The meaning of place for family well-being in families living with chronic illness

机译:共同的喘息—慢性病家庭的幸福感

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摘要

Living with chronic illness is a family affair that involves ongoing changes and challenges in everyday life. When life changes, the environment is important for family health and well-being. The relation between a place and a family is rarely described, and therefore the aim of this study was to explore the meaning of place for family well-being in families living with chronic illness. A qualitative design was chosen. Data were collected by photovoice combined with narrative family research interviews with 10 families living with chronic illness. A phenomenological hermeneutic analysis was used to interpret the data. The results showed that the meaning of place for family well-being in families living with chronic illness can be described as “a shared respite.” This main theme included three subthemes: “a place for relief,” “a place for reflection,” and “a place for re-creation.” These results were further understood by means of the concept place security. Feeling well means having place security in these families. Through knowledge about the meaning of place for family well-being, health care personnel can stimulate families living with chronic illness to find respite in places that contribute to well-being, both in familiar and new places.
机译:患有慢性疾病是一项家庭事务,涉及日常生活中不断发生的变化和挑战。当生活改变时,环境对于家庭健康和幸福至关重要。很少描述地方与家庭之间的关系,因此,本研究的目的是探讨慢性病患者家庭对家庭幸福的意义。选择了定性设计。通过光声收集数据,结合对10个慢性病家庭的叙述性家庭研究访谈。现象学的解释学分析被用来解释数据。结果表明,患有慢性病的家庭对家庭幸福的意义可以被描述为“共同的喘息”。这个主要主题包括三个子主题:“救济之地”,“反思之地”和“娱乐之地”。通过场所安全性的概念进一步了解了这些结果。感觉良好意味着在这些家庭中拥有住所安全。通过了解家庭幸福的意义,医护人员可以刺激患有慢性疾病的家庭在熟悉的地方和新的地方找到有助于幸福的地方的喘息之机。

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