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The Burden of Illness of Erythematotelangiectatic Rosacea and Papulopustular Rosacea: Findings From a Web-based Survey

机译:红细胞毛细血管扩张性酒渣鼻和丘疹性酒渣鼻的疾病负担:基于网络的调查结果

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摘要

>Objective: Evaluate patients’ perceptions of rosacea symptoms and treatments.>Design: Cross-sectional, web-based survey conducted from May 8 to July 1,2015. >Setting: E-mail invitation. >Participants: Male and female adults in the United States who self-reported having a physician’s diagnosis of rosacea.>Measurements: Sociodemographic and clinical characteristics were collected for eligible respondents using the Self-Assessment of Rosacea Facial Redness scale and the Symptom Assessment for Rosacea Facial Bumps and Pimples questionnaire. Respondents were instructed how to differentiate erythematotelangiectatic rosacea and papulopustular rosacea. Use of different treatments and satisfaction with treatment were assessed, as were coping mechanisms.>Results: More than 4,000 individuals responded and 600 completed the survey. The participants’ mean age was 51.7 years and more than 90 percent rated their rosacea severity as mild or moderate. Most practiced stress and/or anxiety management, used makeup to cover rosacea, used sun protection, and changed their exercise regimens to cope with rosacea flare-ups. Participants reported avoiding sun exposure, hot baths and saunas, and specific skin care products to circumvent potential rosacea flare-ups. More than half (55.7%) had used a prescribed topical agent for rosacea in the preceding month, and 26.3 percent had used a prescribed oral antibiotic. Fewer than half were satisfied with treatment outcomes.>Conclusion: Despite the chronic nature of rosacea, participants commonly used prescription agents only to treat flare-ups and relied on sun protection and other avoidance mechanisms to reduce their frequency. Education is needed to communicate the long-term nature of rosacea and the need for continued treatment to maintain long-term control.
机译:>目的:评估患者对酒渣鼻症状和治疗的理解。>设计:基于网络的横断面调查于2015年5月8日至7月1日进行。 >设置:电子邮件邀请。 >参与者:在美国自我报告有医生诊断为酒渣鼻的成年男性和女性。酒渣鼻面部充血量表评估和酒渣鼻面部红肿和丘疹症状评估。指导受访者如何区分红斑性毛细血管扩张性酒渣鼻和丘疹性丘疹性酒渣鼻。评估了使用不同治疗方法和对治疗的满意度以及应对机制。>结果:有4,000多人对此做出了回应,其中600人完成了调查。参与者的平均年龄为51.7岁,超过90%的人将酒渣鼻严重程度定为轻度或中度。大多数练习压力和/或焦虑管理,使用化妆品遮盖酒渣鼻,使用防晒霜以及更改锻炼方式以应对酒渣鼻发作的方法。参与者报告避免日晒,热水浴和桑拿以及特定的皮肤护理产品,以避免潜在的酒渣鼻发作。在上个月中,超过一半(55.7%)的人使用了酒渣鼻的处方外用剂,而26.3%的人使用了口服抗生素。不到一半的人对治疗效果感到满意。需要进行教育以传达酒渣鼻的长期性以及继续治疗以保持长期控制的需要。

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