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Challenges to the Application of Integrated Personalized Care for Patients with COPD—A Vision for the Role of Clinical Information

机译:慢性阻塞性肺病患者应用综合个性化护理的挑战—临床信息作用的愿景

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摘要

Chronic Obstructive Pulmonary Disease (COPD) is a complex disease defined by airflow limitation and characterized by a spectrum of treatable and untreatable pulmonary and extra-pulmonary disease characteristics. Nonpharmacological management related to physical activity, physical capacity, body composition, breathing and energy-saving techniques, coping strategies, and self-management is as important as its pharmacological management. Most patients with COPD carry other chronic diagnoses and this poses a key challenge, as it lowers the quality of life, increases mortality, and impacts healthcare consumption. A personalized, multi-, and interprofessional approach is key. Today, healthcare is poorly organized to meet this complexity with the isolation between care levels, logic silos of the different healthcare professions, and lack of continuity of care along the patient’s journey with the healthcare system. In order to meet the criteria for integrated, personalized care for COPD, the structural capabilities of healthcare to support a comprehensive approach and continuity of care needs improvement. COPD is preeminently a disease that requires a transition from a reactive single-specialty approach to a proactive interprofessional approach. In this study, we discuss the issues that need to be addressed when moving from current health care practice to a person-centered model where the care processes and information are aligned to the individual personal needs of the patient.
机译:慢性阻塞性肺疾病(COPD)是一种由气流受限所定义的复杂疾病,其特征是一系列可治疗且无法治愈的肺部和肺外疾病。与身体活动,体力,身体组成,呼吸和节能技术,应对策略以及自我管理有关的非药物管理与药物管理一样重要。大多数COPD患者会进行其他慢性诊断,这构成了关键挑战,因为它降低了生活质量,增加了死亡率并影响了医疗保健消费。个性化,跨行业和跨行业的方法至关重要。如今,医疗保健组织得很差,无法满足这种复杂性,因为医疗保健级别之间存在隔离,不同医疗保健行业的逻辑孤岛以及患者在使用医疗保健系统的过程中缺乏连续性。为了满足慢性阻塞性肺病的综合,个性化护理标准,需要改善医疗保健以支持综合方法和持续护理的结构能力。慢性阻塞性肺病主要是一种疾病,需要从被动的专科治疗过渡到主动的跨专业治疗。在本研究中,我们讨论了从当前的医疗保健实践转变为以人为中心的模型时需要解决的问题,在该模型中,护理过程和信息与患者的个人需求相吻合。

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