I-CoPE: A pilot study of structured supportive care delivery to people with newly diagnosed high-grade glioma and their carers

摘要

There is limited evidence to guide best approaches to supportive care delivery to patients with high-grade glioma. I-CoPE ( nformation, ordination, reparation and motional) is a structured supportive care approach for people with newly diagnosed high-grade glioma and their family carers. Delivered by a cancer care coordinator, I-CoPE consists of (1) staged information, (2) regular screening for needs, (3) communication and coordination, and (4) family carer engagement. This pilot study tested acceptability and preliminary effectiveness of I-CoPE, delivered over 3 transitions in the illness course, for people newly diagnosed with high-grade glioma and their carers.