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Paediatric Home Artificial Nutrition in Italy: Report from 2016 Survey on Behalf of Artificial Nutrition Network of Italian Society for Gastroenterology Hepatology and Nutrition (SIGENP)

机译:意大利儿科家庭人工营养:2016年意大利胃肠病肝病和营养学会(SIGENP)人工营养网络代表调查报告

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摘要

Home Artificial Nutrition (HAN) is a safe and efficacious technique that insures children’s reintegration into the family, society and school. Epidemiological data on paediatric HAN in Italy are not available. Aim: to detect the prevalence and incidence of Home Parenteral Nutrition (HPN) and Home Enteral Nutrition (HEN), either via tube or mouth, in Italy in 2016. Materials and methods: a specific form was sent to all registered SIGENP members and investigators of local HAN centres, inviting them to provide the requested centre’s data and demographics, underlying diseases and HAN characteristics of the patients. Results: we recorded 3403 Italian patients on HAN aged 0 to 19 years from 22 centres: 2277 HEN, 950 Oral Nutritional Supplements (ONS) and 179 HPN programs. The prevalence of HEN (205 pts/million inhabitants) and HPN (16 pts/million inhabitants) has dramatically increased in Italy in the last 9 years. Neurodisabling conditions were the first indication for HEN by tube or mouth while HPN is mainly requested in digestive disorders. Conclusions: HAN is a widespread and rapidly growing treatment in Italy, as well as in other European countries. Awareness of its extent and characteristics helps improving HAN service and patients’ quality of life.
机译:家庭人工营养(HAN)是一种安全有效的技术,可确保儿童重新融入家庭,社会和学校。没有关于意大利小儿HAN的流行病学数据。目的:2016年在意大利通过管或口检测家庭肠胃外营养(HPN)和家庭肠内营养(HEN)的患病率和发病率。材料和方法:将特定表格发送给所有SIGENP注册会员和研究者的HAN中心,邀请他们提供所要求的中心的数据和人口统计资料,潜在疾病和患者的HAN特征。结果:我们从22个中心记录了3403名0至19岁的HAN的意大利患者:2277 HEN,950个口服营养补品(ONS)和179个HPN程序。在过去的9年中,意大利的HEN(205 pts /百万居民)和HPN(16 pts /百万居民)患病率急剧上升。神经功能失调的疾病是通过管或口对HEN的第一个适应症,而HPN主要用于消化系统疾病。结论:HAN是在意大利以及其他欧洲国家中广泛且快速增长的治疗方法。对其范围和特征的了解有助于改善HAN服务和患者的生活质量。

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