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Enhancing Pediatric Palliative Care for Latino Children and Their Families: A Review of the Literature and Recommendations for Research and Practice in the United States

机译:加强对拉丁裔儿童及其家庭的儿科姑息治疗:对美国研究与实践文献和建议的评论

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摘要

As the demand for pediatric palliative care (PC) increases, data suggest that Latino children are less likely to receive services than non-Latino children. Evidence on how to best provide PC to Latino children is sparse. We conducted a narrative review of literature related to PC for Latino children and their families in the United States. In the United States, Latinos face multiple barriers that affect their receipt of PC, including poverty, lack of access to health insurance, language barriers, discrimination, and cultural differences. Pediatric PC research and clinical initiatives that target the needs of Latino families are sparse, underfunded, but essential. Education of providers on Latino cultural values is necessary. Additionally, advocacy efforts with a focus on equitable care and policy reform are essential to improving the health of this vulnerable population.
机译:随着对儿科姑息治疗(PC)的需求增加,数据表明,拉丁美洲裔儿童比非拉丁美洲裔儿童接受服务的可能性更低。关于如何最好地为拉丁裔儿童提供PC的证据很少。我们对美国拉丁裔儿童及其家庭的PC相关文献进行了叙述性回顾。在美国,拉丁美洲人面临着多种障碍,这会影响他们获得PC的机会,包括贫穷,无法获得医疗保险,语言障碍,歧视和文化差异。针对拉丁裔家庭需求的儿科PC研究和临床计划很少,资金不足,但必不可少。对提供者进行拉丁美洲文化价值观的教育是必要的。此外,以公平关怀和政策改革为重点的宣传工作对于改善这一弱势群体的健康至关重要。

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