Presenting life with cystic fibrosis: a Q‐methodological approach to developing balanced experience‐based prenatal screening information

摘要

BackgroundCystic fibrosis (CF) is one of the most common life‐threatening genetically inherited conditions and prenatal screening for CF is available in many countries. Genetic counsellors and other health professionals are expected to provide information about the condition in a way that facilitates personal decision making. Knowing what information to deliver about complex genetic conditions to support informed screening decisions can be challenging for health professionals.