Expectations and values about expanded newborn screening: a public engagement study

机译：扩大新生儿筛查的期望和价值：一项公众参与研究

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ObjectivesNewborn bloodspot screening (NBS) panels have expanded to include conditions for which treatment effects are less certain, creating debate about population‐based screening criteria. We investigated Canadian public expectations and values regarding the types of conditions that should be included in NBS and whether parents should provide consent.

机译：目标新生儿血斑筛查（NBS）面板已扩大到包括治疗效果不确定的疾病条件，引发了有关基于人群的筛查标准的争论。我们调查了加拿大公众对NBS应包括的条件类型以及父母是否应提供同意的期望和价值观。

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期刊名称 Health Expectations : An International Journal of Public Participation in Health Care and Health Policy
作者
Robin Z. Hayeems; Fiona A. Miller; Yvonne Bombard; Denise Avard; June Carroll; Brenda Wilson; Julian Little; Pranesh Chakraborty; Jessica Bytautas; Yves Giguere; Judith Allanson; Renata Axler;
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作者单位

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年(卷),期 2015(18),3
年度 2015
页码 419–429
总页数 11
原文格式 PDF
正文语种
中图分类公共卫生工程;医院、综合医院;中医院;
关键词
expanded newborn screening mixed methods public engagement public expectations;

机译：扩大新生儿筛查;混合方法;公众参与;公众期望;

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专利

1. Expectations and values about expanded newborn screening: a public engagement study [J] . Hayeems Robin Z., Miller Fiona A., Bombard Yvonne, Health expectations: an international journal of public participation in health care and health policy . 2015,第3期

机译：扩大新生儿筛查的期望和价值：一项公众参与研究
2. Expectations and values about expanded newborn screening: a public engagement study [J] . Robin Z. Hayeems, Fiona A. Miller, Yvonne Bombard, Health expectations: an international journal of public participation in health care and health policy . 2015,第3期

机译：扩大新生儿筛查的期望和价值：一项公众参与研究
3. Public Attitudes Toward Expanded Newborn Screening [J] . Jane M. DeLuca Journal of pediatric nursing . 2018,第期

机译：公众对扩展新生儿筛查的态度
4. BNFL EXPERIENCE OF PUBLIC ENGAGEMENT: EXPECTATIONS FOR RISK POLICIES [C] . R. Coates Workshop on better integration of radiation protection in modern society . 2002

机译：BNFL公共订婚经验：对风险政策的期望
5. An Exploratory Study of Priority Based Budgeting: Identification of Public Values and Public Priorities through Citizen Engagement in Government Budgeting Decisions. [D] . Mitchell, Sheryl Warren. 2014

机译：基于优先级的预算探索性研究：通过公民参与政府预算决策来确定公共价值和公共优先级。
6. A pilot study of expanded newborn screening for 573 genes related to severe inherited disorders in China: results from 1127 newborns [O] . Xiaomei Luo, Yu Sun, Feng Xu, 2020

机译：在中国的严重遗传疾病相关的573基因扩增新生儿筛查的试验研究：1127新生儿的结果
7. First Results From Expanded Newborn Screening in slovak Republic [O] . Dluholucký S., Knapková M., Záhorcová M. 2014

机译：斯洛伐克共和国扩大新生儿筛查的第一批结果

Expectations and values about expanded newborn screening: a public engagement study

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