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Public Attitudes toward Biobanking of Human Biological Material for Research Purposes: A Literature Review

机译:公众对于研究目的的人类生物材料生物存储的态度:文献综述

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摘要

Background: During the past few decades there has been a growing interest on the part of many governments in the creation of biobanks. Nevertheless, this would be impossible without participation of many donors who offer samples of their biological material for scientific research. Therefore, the aim of this paper is to provide an overview of the existing research on social attitudes towards biobanking. Material and Methods: A literature search was conducted in the database of MEDLINE (PubMed). 61 papers were included in the analysis. The retrieved articles were assessed using a thematic analysis. Results: Eight main themes were identified: (1) public knowledge about biobanks, (2) public views on biobanking, (3) willingness to donate, (4) donors’ motivations, (5) perceived benefits and risks of biobanking, (6) preferred type of consent, (7) trust toward biobanks, and (8) demographic characteristics of potential donors. Conclusions: Although the public lacks knowledge about biobanking, many individuals declare willingness to donate. Their will is influenced by: their knowledge about biobanking, the type of donated tissue, research purpose, concerns over the safety of the data, preferred type of consent, and trust towards biobanks.
机译:背景:在过去的几十年中,许多政府对建立生物库的兴趣日益浓厚。但是,如果没有许多提供其生物材料样品进行科学研究的捐助者的参与,这将是不可能的。因此,本文的目的是概述有关生物银行社会态度的现有研究。材料和方法:在MEDLINE(PubMed)的数据库中进行文献检索。分析中包括61篇论文。使用主题分析对检索到的文章进行评估。结果:确定了八个主要主题:(1)关于生物库的公众知识;(2)关于生物库的公众观点;(3)捐赠意愿;(4)捐助者的动机;(5)生物库的感知收益和风险;(6) )的同意类型;(7)对生物库的信任;(8)潜在捐赠者的人口统计特征。结论:尽管公众缺乏有关生物银行的知识,但许多人宣称愿意捐款。他们的意愿受到以下方面的影响:他们对生物库的知识,捐赠组织的类型,研究目的,对数据安全性的担忧,首选的同意类型以及对生物库的信任。

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