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Paper: Choice is not the issue. The misrepresentation of healthcare in bioethical discourse

机译:纸:选择不是问题。生物伦理话语中医疗保健的虚假陈述

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摘要

The principle of respect for autonomy has shaped much of the bioethics' discourse over the last 50 years, and is now most commonly used in the meaning of respecting autonomous choice. This is probably related to the influential concept of informed consent, which originated in research ethics and was soon also applied to the field of clinical medicine. But while available choices in medical research are well defined, this is rarely the case in healthcare. Consideration of ordinary medical practice reveals that the focus on patient choice does not properly grasp the moral aspects involved in healthcare. Medical decisions are often portrayed as if doctors and patients in confidence confront specific decisions about examinations or treatment, yet the reality often involves many different participants, with decisions being made over time and space. Indeed, most of the decisions are never even presented to patients, as it would be unethical to suggest something that is not medically justifiable. The options patients do confront are somewhat arbitrarily constructed within the narrow framework of both what is deemed to be medically appropriate and how the healthcare system is organised practically. While the autonomy discourse has proven valuable, a failure to distinguish between the fields of medical research and clinical medicine has generated a focus on patient choice that does not reflect what is really at stake in healthcare settings. This is alarming, because the current discourse misrepresents medical practice in a way that actually contributes to bioethical self-delusion.
机译:在过去的五十多年中,尊重自治的原则已经影响了许多生物伦理学的论述,现在,在尊重自主选择的意义上,它最常用。这可能与有影响力的知情同意概念有关,该概念起源于研究伦理学,不久也被应用于临床医学领域。但是,尽管医学研究中的可用选择已得到明确定义,但在医疗保健领域却很少见。对普通医疗实践的考虑表明,对患者选择的关注不能正确地把握医疗保健中涉及的道德方面。通常将医疗决策刻画成医生和患者充满信心地面对有关检查或治疗的特定决策,但是现实往往涉及许多不同的参与者,而且决策是在时间和空间上做出的。实际上,大多数决定甚至都不会呈现给患者,因为提出某些在医学上不合理的建议是不道德的。患者所面对的选择是在狭窄的框架内任意构造的,两者都被认为在医学上是适当的,在实际情况下医疗体系也是如此。尽管自治性话语已被证明是有价值的,但未能区分医学研究和临床医学领域已引起人们对患者选择的关注,而这种选择并不能反映出医疗机构真正面临的风险。这是令人震惊的,因为当前的话语以某种实际上助长了生物伦理学自我欺骗的方式歪曲了医学实践。

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