Objective To understand disease burden of caregivers of patients during rehabilitation in hospital and its influencing factors. Methods Family Burden Scale of Disease, Social Support Rating Scale were applied in the survey of caregivers and activity of daily living assessment for stroke patients during rehabilitation in hospital. Results All the caregivers of stroke patients during rehabilitation in hospital had disease burden and they shouldered serious burden in the dimension of family entertainment activities, with a score of (1.259 ±0.568). The age of the patient, subjective support, objective support, residence and monthly medical expenses impacted disease burden significantly. Conclusion The caregivers of stroke patients during rehabilitation in hospital bear disease burden in varying degrees, and more support should be provided for them.%目的 了解康复期住院脑卒中患者的主要照顾者疾病负担状况,探讨其影响因素.方法 采用整群抽样法,运用中文版疾病家庭负担量表、社会支持评定量表对厦门市中医院康复科住院的脑卒中患者的家庭主要照顾者进行调查,运用日常生活能力量表对脑卒中患者进行调查.结果 本组脑卒中患者的照顾者均存在不同程度的负担,其中负担最重的维度是家庭娱乐活动(1.259±0.568)分,其次是家庭日常生活(1.170±0.549)分.患者年龄、每月支付的医疗费用以及照顾者的主观支持、客观支持、居住地对照顾者家庭疾病负担影响有统计学意义.结论 康复期脑卒中住院患者家庭具有较大的疾病负担,护士在为患者提供服务的同时,也应该考虑照顾者的身心健康,为他们提供较为安静、舒适的环境和一定的娱乐措施,大力开展优质护理服务,帮助其减轻长期照看患者的负担.
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