(1017)SATISFACTION WITH THERAPEUTIC EDUCATION AND PERCEPTION OF QUALITY OF LIFE IN CHILDREN WITH TYPE 1 DIABETES

摘要

Background: After diagnosis of diabetes, the child / adolescent and family are faced with the onset of achronic disease that requires a monitoring of the health care team, for that adaptation to this newreality that allows the child / adolescent reaches the best level of health and a good quality of life.Preparing the child and family for autonomy in providing all the necessary care is one of the mainfunctions of the nurse through therapeutic education, being crucial the establishment of an empathicrelationship. The information and incentive directed to children must be appropriate to their cognitivestage of development and the establishment of a constructive relationship with the child and family,and their satisfaction with the care service, can determine the success of adherence to the treatmentand the complete integration in the normal school life.Objectives: Identify the variables that interfere with the child's perception in their quality of life andcorrelate satisfaction with therapeutic education and the perception of quality of life.Methods: A quantitative, cross sectional, descriptive and correlational study was performed on a nonprobabilisticsample composed of 135 children/adolescents with diabetes. A survey comprising sociodemographicand clinical characterization questions was used, the Pediatric Quality of Life Inventory(PedsQL 4.0)Portuguese version (Lima, Guerra, & Lemos, 2009)[1] as well an adaptation of theSurvey on the Patient Satisfaction with the therapeutic education in Diabetes (Chaves et al, 2009)[2].Results: The sample had between 8 and 18 years old, average 13:45 years (SD = 2.83). Most children/ adolescents attending the 2nd and 3rd cycle of basic education (55.6%), 31.1% secondary education/ professional and only 13.3% attend the 1st cycle of basic education. Females had higher meanscores in all subscales of satisfaction with therapeutic education. Children / adolescents who wereaged <= 12 and > = 15 years old and who feel satisfied with the therapeutic education tend to perceivetheir quality of life as reasonable. There was no statistically significance between sex and the qualityof life. There was no statistically association between sex and the quality of life (Chi-square= 4.453, p=0.108). From the analysis of the trajectories of the various variables studied and its relationship toquality of life can be seen that the dimension "relationship/communication" of the therapeuticeducation is the one with the highest predictive power implying the Physical, Emotional and Socialfunctioning in quality of life. The dimension "Initial Assessment" in therapeutic education and age havepredictive value, explaining 19% of the variation observed in the Functioning at School (R2 =0,19).Age and the dimension "relationship/communication" established in the therapeutic educationhad predictive value in global good perception of quality of life.Conclusion: Therapeutic education carried out by the nursing team, especially the relationship/communication established with the child / adolescent proved be fundamental in the positiveperception of their quality of life.