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Health-related quality of life and coping strategies of children after treatment of a malignant bone tumor: a 5-year follow-up study.

机译:恶性骨肿瘤治疗后儿童的健康相关生活质量和应对策略:一项为期5年的随访研究。

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PURPOSE: This study was designed to evaluate the development of health-related quality of life (HRQoL) and coping strategies of children and young adults, who have undergone surgery for a malignant bone tumor in childhood. PATIENTS AND INSTRUMENTS: In this single center follow-up study 20 patients were included. The patients were tested 3 and 8 years after treatment. At the 3-year mark the parents participated as well. To measure the HRQoL and coping strategies the TACQOL and the TAAQOL questionnaires and the Utrecht Coping List for Adolescents (UCLA) were used. All measurements were compared to a control group of healthy peers (n = 1,122 and n = 272, respectively). RESULTS: At the first measurement (3 years after treatment) both the study patients and their parents reported significantly lower HRQoL scores on two domains: motor functioning and autonomy (P < 0.05). In addition parents reported their children to have significantly lower HRQoL scores on cognitive functioning and experiencing positive emotions. Five years later (8 years after treatment) the young adults reported comparable HRQoL on motor functioning and autonomy, and significantly higher HRQoL scores on cognitive functioning, social contacts and negative emotions (less depressive moods). With regard to coping strategies no significant differences between the two measurements in the study population and the reference group were found. CONCLUSIONS: Three years after surgery for a malignant bone tumor, patients and their parents reported lower HRQoL scores on different domains compared with a reference group. Eight years after surgery the young adults surprisingly reported comparable or higher HRQoL scores. These patients treated for bone cancer were able to adapt well after treatment and showed no long-term emotional or social problems.
机译:目的:本研究旨在评估与健康相关的生活质量(HRQoL)的发展以及应对儿童期和青年期的应对策略,这些儿童和青年期曾接受过儿童恶性骨肿瘤手术治疗。病人和仪器:在该单中心随访研究中,包括20名患者。治疗后3年和8年对患者进行了测试。在三年级的时候,父母也参加了。为了测量HRQoL和应对策略,使用了TACQOL和TAAQOL问卷以及乌特勒支青少年应对清单(UCLA)。将所有测量结果与健康同龄人的对照组进行比较(分别为n = 1,122和n = 272)。结果:在首次测量(治疗后3年)时,研究患者及其父母均报告了在两个方面的HRQoL得分显着降低:运动功能和自主性(P <0.05)。此外,父母报告说,他们的孩子在认知功能和经历积极情绪方面的HRQoL得分明显较低。五年后(治疗后8年),年轻人报告了在运动功能和自主性方面可比的HRQoL,并且在认知功能,社交接触和负面情绪(较少的抑郁情绪)上的HRQoL得分明显更高。关于应对策略,在研究人群和参考人群中两次测量之间没有显着差异。结论:恶性骨肿瘤手术三年后,患者及其父母在不同领域的HRQoL得分均低于参考组。手术八年后,年轻人意外地报告了可比或更高的HRQoL分数。这些接受过骨癌治疗的患者在治疗后能够很好地适应,并且没有长期的情绪或社会问题。

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