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Understanding the experiences and quality of life issues of Bahraini women with breast cancer

机译:了解巴林患有乳腺癌的妇女的经验和生活质量问题

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We explored the experiences of Bahraini women who have survived breast cancer and their perception of quality of life after diagnosis. We conducted in depth, semi-structured face-to-face interviews with twelve women diagnosed with breast cancer. A qualitative method using semi-structured interviews on a purposive sample of 12 Bahraini women with breast cancer was conducted. Similarities and differences in women's experience were identified through thematic analysis of interview transcripts using a constant comparative approach. The themes identified were meaning of cancer and quality of life, spirituality and beliefs about causes of breast cancer, coping mechanisms, impact of illness and change in relationships. Quality of life was framed in terms of the ability to perform daily duties with emphasis on the physical component of quality of life. Themes that differed from previous western studies included a heavy emphasis on spiritual practices for comfort; the use of traditional clothing (hijab and abaya) to hide hair and body changes; the important role played by the family and husband in treatment decisions and concerns regarding satisfying the sexual needs of the husband, which were related to a fear of losing the husband to a second wife. Evil eye, stress and God's punishment were believed to be fundamental causes of the disease. The emotional shock of the initial diagnosis, concerns about whether to reveal the diagnosis and a desire to live a normal life were consistent with previous studies. However, cultural and religious issues such as role of the husband and impact of prayers were also important here. These themes are important to healthcare professionals for ensuring an individualized approach to the treatment of women with breast cancer.
机译:我们探讨了在乳腺癌中幸存下来的巴林妇女的经历以及诊断后对生活质量的看法。我们对十二名被诊断患有乳腺癌的妇女进行了深入,半结构化的面对面采访。采用半结构化访谈的定性方法,对12名巴林女性乳腺癌的目标样本进行了研究。通过采用持续比较方法对访谈笔录进行主题分析,确定了女性经历的异同。所确定的主题是癌症的含义和生活质量,对乳腺癌起因的灵性和信念,应对机制,疾病的影响以及人际关系的变化。生活质量的定义是履行日常职责的能力,重点是生活质量的身体组成部分。与以前的西方研究不同的主题包括:高度重视精神修行的舒适性。使用传统服装(盖头和长袍)隐藏头发和身体变化;家庭和丈夫在治疗决定中的重要作用以及对满足丈夫的性需求的担忧,这与害怕将丈夫丢给第二任妻子有关。凶恶的眼神,压力和神的惩罚被认为是造成这种疾病的根本原因。最初诊断的情感冲击,对是否透露诊断的关注以及过正常生活的愿望与先前的研究一致。但是,文化和宗教问题,例如丈夫的角色和祈祷的影响在这里也很重要。这些主题对于确保专业化的乳腺癌女性治疗方法对于医疗保健专业人员而言非常重要。

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