Rare Disorders

摘要

Every year, hundreds of Ca-nadians with severe or life-threatening disorders do not get access to the medicines they need. What do these patients have in common? They all have rare disorders. It's almost unbelievable but true. With a public health system that is the envy of much of the world, Canada sadly lags behind almost all other developed nations, including the U.S., the [ill, Japan and Australia, in our care and treatment for rare disorders. We've made progress over the past lew years hut it's time tor Canada to stop making excuses and bring in a comprehensive plan that will give Canadians with ran-disorders the same treatment as those with common ones.