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Non-invasive prenatal testing: ethical issues explored.

机译:非侵入性产前检查:探讨伦理问题。

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This paper explores the ethical implications of introducing non-invasive prenatal diagnostic tests (NIPD tests) in prenatal screening for foetal abnormalities. NIPD tests are easy and safe and can be performed early in pregnancy. Precisely because of these features, it is feared that informed consent may become more difficult, that both testing and selective abortion will become 'normalized', and that there will be a trend towards accepting testing for minor abnormalities and non-medical traits as well. In our view, however, the real moral challenge of NIPD testing consists in the possibility of linking up a technique with these features (easy, safe and early) with new genomic technologies that allow prenatal diagnostic testing for a much broader range of abnormalities than is the case in current procedures. An increase in uptake and more selective abortions need not in itself be taken to signal a thoughtless acceptance of these procedures. However, combining this with considerably enlarging the scope of NIPD testing will indeed make informed consent more difficult and challenge the notion of prenatal screening as serving reproductive autonomy. If broad NIPD testing includes later-onset diseases, the 'right not to know' of the future child will become a new issue in the debate about prenatal screening. With regard to the controversial issue of selective abortion, it may make a morally relevant difference that after NIPD testing, abortion can be done early. A lower moral status may be attributed to the foetus at that moment, given the dominant opinion that the moral status of the foetus progressively increases with its development.
机译:本文探讨了在胎儿畸形的产前筛查中引入非侵入性产前诊断测试(NIPD测试)的伦理意义。 NIPD测试既简单又安全,可以在怀孕初期进行。正是由于这些特征,人们担心知情同意可能会变得更加困难,测试和选择性流产都将被“规范化”,并且还会有接受轻微异常和非医学特征的测试的趋势。但是,在我们看来,NIPD测试的真正道德挑战在于将具有这些功能(简便,安全和早期)的技术与新的基因组技术相链接的可能性,这些新的基因组技术允许进行产前诊断测试,其异常范围比以前大得多。当前程序中的情况。本身并不需要采取摄取增加和选择性流产来表示对这些程序的不加思索的接受。但是,将其与大大扩大NIPD测试的范围相结合,确实会使知情同意更加困难,并挑战产前筛查作为生殖自主权的观念。如果广泛的NIPD测试包括较晚发作的疾病,那么在关于产前筛查的辩论中,对未来孩子的“不知情权”将成为一个新问题。关于选择性流产这一有争议的问题,在进行NIPD测试后,可以尽早进行流产可能在道德上产生重大影响。鉴于主流观点认为胎儿的道德地位会随着其发展而逐渐增加,因此此时的道德水平可能较低。

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