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Ethical aspects of using GPS for tracking people with dementia: recommendations for practice.

机译:使用GPS追踪痴呆症患者的道德方面:实践建议。

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摘要

Problems with out-of-home mobility are among the more common behavioral disturbances in dementia. Today people with dementia can be aided by easily accessible assistive technologies, such as tracking devices using Global Positioning Systems (GPS). Attitudes toward these technologies are still inconclusive and their use with people with dementia raises ethical concerns. The lack of ethical consensus on the use of GPS for people with dementia underlines the need for clearer policies and practical guidelines.Here we summarize qualitative and quantitative findings from a larger research project on the ethical aspects of using GPS for tracking people with dementia.The findings are formulated in a list of recommendations for policy-makers as well as for professional and family caregivers. Among other points, the recommendations indicate that the preferences and best interests of the people with dementia should be central to the difficult decisions required in dementia care. Further, no-one should be coerced into using tracking technology and, where possible, people with dementia must be involved in the decision-making and their consent sought.The decision whether, when and how to use GPS for tracking people with dementia should be made at the time of diagnosis jointly by the person with dementia, his/her family and professional caregivers. This decision should be made in formal structured meetings facilitated by a professional team.
机译:出行不便的问题是痴呆症中较常见的行为障碍之一。如今,痴呆症患者可以通过易于使用的辅助技术来获得帮助,例如使用全球定位系统(GPS)的跟踪设备。对这些技术的态度仍然没有定论,并且将其与痴呆症患者一起使用会引起伦理问题。在痴呆症患者使用GPS方面缺乏伦理共识,这凸显了对更清晰的政策和实践指南的需求。在此,我们总结了一项较大的研究项目在使用GPS追踪痴呆症患者的道德方面的定性和定量研究结果。调查结果在针对政策制定者以及专业和家庭护理人员的建议列表中列出。这些建议尤其指出,痴呆症患者的偏好和最大利益对于痴呆症护理中需要做出的艰难决定至关重要。此外,不应强迫任何人使用追踪技术,并且在可能的情况下必须让痴呆症患者参与决策并征得他们的同意。是否,何时以及如何使用GPS追踪痴呆症患者的决定应由诊断时由痴呆症患者,其家人和专业护理人员共同完成。该决定应在专业团队的协助下,在正式的结构化会议中做出。

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