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The Importance of Primary Immune Deficiency Registries The United States Immunodeficiency Network Registry

机译:原发性免疫缺陷注册管理机构的重要性美国免疫租借网络登记处

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摘要

The importance of registries is vital for almost every human disease but crucial for rare disorders, where the centralized collection, organization, and quality check of data create a platform from where multiple analyses and scientific advances are possible. In this article, the authors review the creation of the United States Immunodeficiency Network registry, its role, and the numerous scientific achievements generated from the collective effort of many.
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