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Genetic Privacy: Might There Be a Moral Duty to Share One's Genetic Information?

机译:基因隐私:分享他人的遗传信息是否有道德义务?

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摘要

In discussions about direct-to-consumer availability of genetic testing, much attention has been given to identifying the various risks and benefits that individuals might incur. For example, upon learning one's genetic information, an individual may practice better preventive behaviors, watch for symptoms, or even alter reproductive choices. On the side of risks, an individual might misunderstand the information, experience fatalism, or develop a false sense of security. Much attention has also been given to the development of various methods, policies and regulations designed to ensure that the expected benefits actually arise and that the risks are minimized. For example, scholars discuss policies aimed at protecting genetic confidentiality (Resnick 2009) or ensuring that individuals who share their genetic information with medical researchers are given the protections typically afforded to research subjects (Wasson 2009).
机译:在有关直接向消费​​者提供基因检测的讨论中,人们已经非常重视确定个人可能产生的各种风险和利益。例如,在学习了一个人的遗传信息后,一个人可能会练习更好的预防行为,注意症状,甚至改变生殖选择。在风险方面,个人可能会误解信息,遭受宿命论或形成错误的安全感。人们还对各种方法,政策和法规的开发给予了极大的关注,这些方法,政策和法规旨在确保实际产生预期的收益并最大程度地降低风险。例如,学者们讨论了旨在保护遗传机密性的政策(Resnick 2009)或确保与医学研究人员共享遗传信息的个人受到通常给予研究对象的保护(Wasson 2009)。

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