Health related quality of life in children with spina bifida in Uganda

摘要

BackgroundStudies on health related quality of life (HRQOL) of children with disabilities in low income countries are limited. ObjectiveTo inform interventions for children with spina bifida in low income countries, HRQOL of children with spina bifida and siblings, predictors, relationships between HRQOL and parental stress in Uganda were examined. MethodsDemographic, impairment, daily, social functioning data, and HRQOL using the KIDSCREEN-10 were collected from 39 children, 33 siblings, and 39 parents from a cohort of families of children with spina bifida. T-tests, correlations, analysis of variance and regression analysis were used to compare means between children with spina bifida and their siblings, understand relationships between variables, and identify predictors of HRQOL. ResultsChildren with spina bifida (N?=?39) had lower HRQOL compared to their siblings (N?=?33) (t?=??3.868, p?