Differences in Outcomes Reported by Patients With Inflammatory Bowel Diseases vs Their Health Care Professionals

Pittet Valerie E. H.; Maillard Michel H.; Simonson Thomas; Fournier Nicolas; Rogler Gerhard; Michetti Pierre; Anderegg Claudia; Bauerfeind Peter; Beglinger Christoph; Begre Stefan; Belli Dominique; Bengoa Jose M.; Biedermann Luc; Bigler Beat; Binek Janek; Blattmann Mirjam; Boehm Stephan; Borovicka Jan; Braegger Christian P.; Brunner Nora; Buhr Patrick; Burnand Bernard; Burri Emanuel; Buyse Sophie; Cremer Matthias; Criblez Dominique H.; De Saussure Philippe; Degen Lukas; Delarive Joakim; Doerig Christopher; Dora Barbara; Dorta Gian; Egger Mara; Ehmann Tobias; El-Wafa Ali; Engelmann Matthias; Ezri Jessica; Felley Christian; Fliegner Markus; Fraga Montserrat; Frei Pascal; Frei Remus; Fried Michael; Froehlich Florian; Funk Christian; Ivano Furlano Raoul; Gallot-Lavallee Suzanne; Geyer Martin; Girardin Marc; Golay Delphine; Grandinetti Tanja; Gysi Beat; Haack Horst; Haarer Johannes; Helbling Beat; Hengstler Peter; Herzog Denise; Hess Cyrill; Heyland Klaas; Hinterleitner Thomas; Hiroz Philippe; Hirschi Claudia; Hruz Petr; Iwata Rika; Jost Res; Juillerat Pascal; Keller Celine; Knellwolf Christina; Knoblauch Christoph; Kohler Henrik; Koller Rebekka; Krieger-Grubel Claudia; Kullak-Ublick Gerd; Landolt Markus; Lange Rupprecht; Serge Lehmann Frank; Macpherson Andrew; Maerten Philippe; Manser Christine; Manz Michael; Marbet Urs; Marx George; Matter Christoph; Meier Remy; Mendanova Martina; Misselwitz Benjamin; Morell Bernhard; Mosler Patrick; Mottet Christian; Mueller Christoph; Mueller Pascal; Muellhaupt Beat; Munger-Beyeler Claudia; Musso Leilla; Nagy Andreas; Neagu Michaela; Nichita Cristina; Niess Jan; Nydegger Andreas; Obialo Nicole; Oneta Carl; Oropesa Cassandra; Peter Ueli; Peternac Daniel; Marie Petit Laetitia; Piccoli-Gfeller Franziska; Beatrice Pilz Julia; Raschle Nadia; Rentsch Ronald; Restellini Sophie; Richterich Jean-Pierre; Rihs Sylvia; Ritz Marc Alain; Roduit Jocelyn; Rogler Daniela; Rossel Jean-Benoit; Rueger Vanessa; Saner Gaby; Sauter Bernhard; Sawatzki Mikael; Schappi Michela; Scharl Michael; Scharl Sylvie; Schelling Martin; Schibli Susanne; Schlauri Hugo; Schmid Uebelhart Sybille; Schnegg Jean-Francois; Schoepfer Alain; Seibold Frank; Seirafi Mariam; Semadeni Gian-Marco; Semela David; Senning Arne; Sidler Marc; Sokollik Christiane; Spalinger Johannes; Spangenberger Holger; Stadler Philippe; Steuerwald Michael; Straumann Alex; Straumann-Funk Bigna; Sulz Michael; Suter Alexandra; Thorens Joel; Tiedemann Sarah; Tutuian Radu; Vavricka Stephan; Viani Francesco; Vogtlin Jurg; Von Kanel Roland; Vonlaufen Alain; Vouillamoz Dominique; Vulliamy Rachel; Wermuth Jurg; Werner Helene; Wiesel Paul; Wiest Reiner; Wylie Tina; Zeitz Jonas; Zimmermann Dorothee

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Differences in Outcomes Reported by Patients With Inflammatory Bowel Diseases vs Their Health Care Professionals

机译：炎症性肠病患者报告的结果的差异与他们的医疗保健专业人员

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BACKGROUND & AIMS: Inflammatory bowel disease (IBD) scoring systems combine patient-reported data with physi- cians' observations to determine patient outcomes, but these systems are believed to have limitations. We used real-world data from a large IBD cohort in Switzerland to compare results between patients and healthcare professionals from scoring systems for Crohn's disease (CD) and ulcerative colitis (UC).

机译：背景和目的：炎症性肠病（IBD）评分系统将患者报告的数据与物理观察结合起来，以确定患者结果，但这些系统被认为具有局限性。我们从瑞士的大型IBD队列中使用了现实世界数据，从克罗恩病（CD）和溃疡性结肠炎（UC）的评分系统中比较患者和医疗保健专业人员之间的结果。

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《Clinical gastroenterology and hepatology: the official clinical practice journal of the American Gastroenterological Association》 |2019年第10期|共11页
作者
Pittet Valerie E. H.; Maillard Michel H.; Simonson Thomas; Fournier Nicolas; Rogler Gerhard; Michetti Pierre; Anderegg Claudia; Bauerfeind Peter; Beglinger Christoph; Begre Stefan; Belli Dominique; Bengoa Jose M.; Biedermann Luc; Bigler Beat; Binek Janek; Blattmann Mirjam; Boehm Stephan; Borovicka Jan; Braegger Christian P.; Brunner Nora; Buhr Patrick; Burnand Bernard; Burri Emanuel; Buyse Sophie; Cremer Matthias; Criblez Dominique H.; De Saussure Philippe; Degen Lukas; Delarive Joakim; Doerig Christopher; Dora Barbara; Dorta Gian; Egger Mara; Ehmann Tobias; El-Wafa Ali; Engelmann Matthias; Ezri Jessica; Felley Christian; Fliegner Markus; Fraga Montserrat; Frei Pascal; Frei Remus; Fried Michael; Froehlich Florian; Funk Christian; Ivano Furlano Raoul; Gallot-Lavallee Suzanne; Geyer Martin; Girardin Marc; Golay Delphine; Grandinetti Tanja; Gysi Beat; Haack Horst; Haarer Johannes; Helbling Beat; Hengstler Peter; Herzog Denise; Hess Cyrill; Heyland Klaas; Hinterleitner Thomas; Hiroz Philippe; Hirschi Claudia; Hruz Petr; Iwata Rika; Jost Res; Juillerat Pascal; Keller Celine; Knellwolf Christina; Knoblauch Christoph; Kohler Henrik; Koller Rebekka; Krieger-Grubel Claudia; Kullak-Ublick Gerd; Landolt Markus; Lange Rupprecht; Serge Lehmann Frank; Macpherson Andrew; Maerten Philippe; Manser Christine; Manz Michael; Marbet Urs; Marx George; Matter Christoph; Meier Remy; Mendanova Martina; Misselwitz Benjamin; Morell Bernhard; Mosler Patrick; Mottet Christian; Mueller Christoph; Mueller Pascal; Muellhaupt Beat; Munger-Beyeler Claudia; Musso Leilla; Nagy Andreas; Neagu Michaela; Nichita Cristina; Niess Jan; Nydegger Andreas; Obialo Nicole; Oneta Carl; Oropesa Cassandra; Peter Ueli; Peternac Daniel; Marie Petit Laetitia; Piccoli-Gfeller Franziska; Beatrice Pilz Julia; Raschle Nadia; Rentsch Ronald; Restellini Sophie; Richterich Jean-Pierre; Rihs Sylvia; Ritz Marc Alain; Roduit Jocelyn; Rogler Daniela; Rossel Jean-Benoit; Rueger Vanessa; Saner Gaby; Sauter Bernhard; Sawatzki Mikael; Schappi Michela; Scharl Michael; Scharl Sylvie; Schelling Martin; Schibli Susanne; Schlauri Hugo; Schmid Uebelhart Sybille; Schnegg Jean-Francois; Schoepfer Alain; Seibold Frank; Seirafi Mariam; Semadeni Gian-Marco; Semela David; Senning Arne; Sidler Marc; Sokollik Christiane; Spalinger Johannes; Spangenberger Holger; Stadler Philippe; Steuerwald Michael; Straumann Alex; Straumann-Funk Bigna; Sulz Michael; Suter Alexandra; Thorens Joel; Tiedemann Sarah; Tutuian Radu; Vavricka Stephan; Viani Francesco; Vogtlin Jurg; Von Kanel Roland; Vonlaufen Alain; Vouillamoz Dominique; Vulliamy Rachel; Wermuth Jurg; Werner Helene; Wiesel Paul; Wiest Reiner; Wylie Tina; Zeitz Jonas; Zimmermann Dorothee;
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作者单位

Lausanne Univ Hosp Inst Social &

Prevent Med Lausanne Switzerland;

Lausanne Univ Hosp Div Gastroenterol &

Hepatol Lausanne Switzerland;

Lausanne Univ Hosp Inst Social &

Prevent Med Lausanne Switzerland;

Lausanne Univ Hosp Inst Social &

Prevent Med Lausanne Switzerland;

Univ Hosp Zurich Dept Gastroenterol &

Hepatol Zurich Switzerland;

Lausanne Univ Hosp Div Gastroenterol &

Hepatol Lausanne Switzerland;

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原文格式 PDF
正文语种 eng
中图分类消化系及腹部疾病;
关键词
Disease Activity Index; SF-36; PRO; Management;

机译：疾病活动指数;SF-36;PRO;管理;

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专利

1. Differences in Outcomes Reported by Patients With Inflammatory Bowel Diseases vs Their Health Care Professionals [J] . Pittet Valerie E. H., Maillard Michel H., Simonson Thomas, Clinical gastroenterology and hepatology: the official clinical practice journal of the American Gastroenterological Association . 2019,第10期

机译：炎症性肠病患者报告的结果的差异与他们的医疗保健专业人员
2. Prime Time Was Yesterday for Patient-reported Outcomes in Daily Care?of?Patients With Inflammatory Bowel?Diseases [J] . Peter Bossuyt, Eveline Hoefkens, Lieven Pouillon Clinical gastroenterology and hepatology: the official clinical practice journal of the American Gastroenterological Association . 2018,第11期

机译：黄金时期是昨天在日常护理中报告的患者报告的结果？？炎症肠道患者？疾病
3. Biosimilars for inflammatory bowel disease: how can healthcare professionals help address patients' concerns? [J] . Gecse Krisztina B., Cumming Fraser, DHaens Geert Expert review of gastroenterology & hepatology . 2019,第1a6期

机译：炎症性肠病的生物仿制性：医疗保健专业人员如何帮助解决患者的担忧？
4. Healthcare and Usability Professionals’ Performance in Reflecting on Visualized Patient-Reported Outcomes [C] . Jannick Scherf, Tilo Mentler, Michael Herczeg IEEE International Conference on Healthcare Informatics . 2020

机译：医疗保健和可用性专业人士在可视化患者报告的结果上的表现
5. Differences in Patient-Reported Outcomes Among Persons With Serious Mental Illness Receiving Integrated Primary and Behavioral Healthcare in Community Mental Health Centers [D] . Brown, Melanie M. 2019

机译：社区心理健康中心接受综合性初级保健和行为保健的严重精神疾病患者的患者报告结果差异
6. Research: Perspectives and attitudes of young patients with inflammatory bowel disease: symptoms burden of disease and communication with their healthcare professionals [O] . C Alexakis, G Davies, J Stephens, 2014

机译：研究：年轻的炎症性肠病患者的观点和态度：症状疾病负担以及与医护人员的沟通
7. Differences in Outcomes Reported by Patients With Inflammatory Bowel Diseases vs Their Health Care Professionals [O] . Valérie E.H. Pittet, Michel H. Maillard, Thomas Simonson, 2019

机译：炎症性肠病患者报告的结果的差异与他们的医疗保健专业人员

Differences in Outcomes Reported by Patients With Inflammatory Bowel Diseases vs Their Health Care Professionals

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