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Living with Male Breast Cancer: A Qualitative Study of Men's Experiences and Care Needs

机译:与男性乳腺癌一起生活:对男性的经验和护理需求进行定性研究

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Background: Male breast cancer (MBC) is rare, and most previous studies limited their focus on clinical aspects of the disease. Psychosocial implications and care needs of MBC patients are poorly understood. Objectives: The aim of this study is to explore the experiences of men living with breast cancer and to identify supportive care needs. Methods: Eighteen men were interviewed using qualitative, semi-structured telephone interviews. Qualitative content analysis was used to analyze the data. Results: The majority of men did not have negative feelings about having a "women's disease," although some felt that stigmatization threatened their masculinity. Male sex was perceived as hindering access to adequate care. Patients identified key barriers including (1) a lack of awareness and experience of treating males among health professionals; (2) treatment and available information were based on evidence for females; and (3) lacking support services. Conclusion: To improve MBC care, it is important to raise awareness of the disease and to adapt treatment strategies, patient information, and support services to meet the needs of men. (c) 2019 S. Karger AG, Basel
机译:背景:雄性乳腺癌(MBC)是罕见的,最先前的研究尤其关注疾病的临床方面。 MBC患者的心理社会影响和护理需求尚不清楚。目的:本研究的目的是探讨与乳腺癌的男性的经历,并确定支持性护理需求。方法:使用定性,半结构化电话访谈采访了十八名男子。定性内容分析用于分析数据。结果:大多数男人对具有“女性疾病”的人没有负面情绪,尽管有些人认为侮辱威胁着他们的男性气质。男性被认为是阻碍足够护理的障碍。患者确定了主要障碍,包括(1)缺乏治疗卫生专业人士之间的雄性的意识和经验; (2)治疗和可用信息基于女性的证据; (3)缺乏支持服务。结论:提高MBC护理,重要的是提高对疾病的认识并适应治疗策略,患者信息和支持服务,以满足男性的需求。 (c)2019年S. Karger AG,巴塞尔

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