Paediatric end-of-life care in the home care setting (PELICAN HOME) - a mixed methods study protocol

摘要

Aims. (a) To explore parental experiences and needs during their child's end-of-life care at home; (b) to explore patient's characteristics and current provision of paediatric end-of-life care in the home care setting in Switzerland; and (c) to determine influencing system factors impacting end-of-life care at home.