Openness, not privacy. Web site promotes sharing disease successes, hardships.

摘要

While most PHR services strive to keep user information private, one Web site encourages users to make personal information like HIV status and medication lists open on the Internet. In fact, PatientsLikeMe. com thrives on the openness of patients sharing their health information.Launched in 2006, PatientsLikeMe is a social networking site that allows people with life-threatening illnesses to connect to others with similar conditions. Users upload personal medical information such as medication lists and symptoms into their profiles and then allow the general community to track their progress.