Does the Caring Role Preclude Sexuality and Intimacy in Coupled Relationships?

摘要

The experiences of people with motor neuron disease (MND) and their partners are rarely reported in research on sexuality. The little research that considers sexuality in this population has found that sexual expression remains important, even when there is extensive disability. Healthcare texts suggest that when partners are required to provide personal care, this impacts upon the couple’s sexual relationship. As part of a larger Heideggerian phenomenological study to understand the experiences of sexuality and intimacy for people living with life-limiting illness, thirteen people with MND and ten partners of people with MND were recruited. Using unstructured, conversational interviews, participants were asked to describe their experiences of sexuality and intimacy (these terms were not defined so that whatever was considered important to them would emerge). The findings from this study enhance our understanding of partners’ caring role within coupled relationships. Although, for some, performing intimate caring tasks precludes any sexual intimacy, this is not always the case. When partners assume the role of care-giver, and the person with a disability assumes a dependent, care-receiver role, the equality in couples’ relationships diminishes. It is this imbalance that can impact upon their sexual and intimate relationship, regardless of whether the care that is given is physically intimate. The implications for health and social care professionals are considered.