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The impact of disease duration on quality of life in children with nephrotic syndrome: a Midwest Pediatric Nephrology Consortium study

机译:疾病持续时间对肾病综合征患儿生活质量的影响:中西部儿科肾脏病联合会的一项研究

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摘要

Background The Patient Reported Outcomes Measurement Information System (PROMIS) II is a prospective study that evaluates patient reported outcomes in pediatric chronic diseases as a measure of health-related quality of life (HRQOL). We have evaluated the influence of disease duration on HRQOL and, for the first time, compared the findings of the PROMIS measures to those of the PedsQL™ 4.0 Generic Scales (PedsQL) from the PROMIS II nephrotic syndrome (NS) longitudinal cohort.
机译:背景患者报告结果测量信息系统(PROMIS)II是一项前瞻性研究,评估了患者报告的小儿慢性疾病预后,以衡量健康相关生活质量(HRQOL)。我们评估了疾病持续时间对HRQOL的影响,并首次将PROMIS措施的发现与PROMIS II肾病综合征(NS)纵向队列的PedsQL™4.0通用量表(PedsQL)的发现进行了比较。

著录项

  • 来源
    《Pediatric Nephrology》 |2015年第9期|1467-1476|共10页
  • 作者单位

    Division of Nephrology Department of Pediatrics and Communicable Diseases C.S. Mott Children’s Hospital University of Michigan">(1);

    Division of Nephrology Department of Pediatrics and Communicable Diseases C.S. Mott Children’s Hospital University of Michigan">(1);

    Division of Pediatric Nephrology Levine Children’s Hospital">(2);

    Division of Nephrology Department of Pediatrics Duke University Medical Center">(3);

    Department of Pediatrics Emory University and Children’s Healthcare of Atlanta">(4);

    Pediatric Nephrology and Hypertension Medical University of South Carolina">(5);

    DeVos Children’s Hospital">(6);

    Pediatric Nephrology and Hypertension Division Children’s Hospital of Michigan">(7);

    Division of Nephrology The Hospital for Sick Children">(8);

    Division of Nephrology Boston Children’s Hospital–Harvard Medical School">(9);

    Division of Nephrology Department of Pediatrics New York University–Langone Medical Center">(10);

    Pediatric Nephrology and Hypertension Medical College of Wisconsin">(11);

    Division of Pediatric Nephrology Department of Pediatrics Washington University at St. Louis">(12);

    Division of Nephrology and Hypertension Cincinnati Children’s Hospital">(13);

    Division of Pediatric Nephrology Cohen Children’s Medical Center of New York">(14);

    Nationwide Children’s Hospital College of Medicine The Ohio State University">(15);

    University of North Carolina">(16);

    Division of Nephrology Department of Pediatrics and Communicable Diseases C.S. Mott Children’s Hospital University of Michigan">(1);

    Department of Psychology University of North Carolina">(17);

    Department of Biostatistics School of Public Health University of Michigan">(18);

    University of North Carolina">(16);

    University of North Carolina">(16);

    Division of Nephrology Department of Pediatrics and Communicable Diseases C.S. Mott Children’s Hospital University of Michigan">(1);

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  • 原文格式 PDF
  • 正文语种 eng
  • 中图分类
  • 关键词

    Patient-reported outcomes; Quality of life; Nephrotic syndrome; Pediatrics; Children;

    机译:患者报告的结果;生活质量;肾病综合征儿科;小孩儿;

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