My Life With Trig

摘要

Last week, Rick Santorum and his family offered us a reminder of what really matters. When his 3-year-old daughter, Bella, born with Trisomy 18, was hospitalized with pneumonia, Rick left the campaign trail to be by her bedside. In the middle of this very heated campaign season, many of us prayed through tears for Bella's health and added prayers of thankfulness for a public example of someone's sacrifice made with the right priorities. It's a sacrifice every parent and caregiver of a child with special needs sympathizes with. Families of children with special needs are bonded by a shared experience of the joys, challenges, fears, and blessings of raising these beautiful children whom we see as perfect in this imperfect world. During the 2008 presidential campaign, on rope lines at rallies across the country, my husband, Todd, and I met so many of these families and caretakers, and I'll never forget them. There was an instant connection-a kind of mutual acknowledgment that said, "Yes, these children are precious and loved. Yes, we face extra fears and challenges, but our children are a blessing, and the rest of the world is missing out in not knowing this."