首页> 外文期刊>Journal of Bioethical Inquiry >The Principle of Caveat Emptor: Confidentiality and Informed Consent as Endemic Ethical Dilemmas in Focus Group Research
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The Principle of Caveat Emptor: Confidentiality and Informed Consent as Endemic Ethical Dilemmas in Focus Group Research

机译:警告雇主的原则:保密和知情同意是焦点小组研究中的地方性伦理困境

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摘要

Informed consent and confidentiality supposedly minimize harm for research participants in all qualitative research methodologies, inclusive of one-on-one unstructured interviews and focus groups. This is not the case for the latter. Confidentiality and informed consent uniquely manifest themselves as endemic ethical dilemmas for focus group researchers. The principle of caveat emptor (let the buyer beware) may be a more useful tool for those involved in focus group research: that is, let the researcher, the participants and the ethics committee beware that the only ethical assurance that can be given to focus group participants is that there are few ethical assurances. These ethical dilemmas are not sufficiently realized in the literature, and if they are discussed, they are often dealt with within the focus group moderator’s preamble to the group discussion. This paper encourages the mandatory use of a participant information sheet sufficiently detailed to engender the participant’s active consent. Sufficient here means the participant must be made adequately aware of these endemic ethical dilemmas in advance, to allow them to consent to share responsibility for any ensuing harm. The focus group moderator is not their sole protector.
机译:知情同意和保密据说可以最大程度地减少所有定性研究方法对研究参与者的伤害,包括一对一的非结构化访谈和焦点小组。后者并非如此。对于焦点小组研究人员而言,保密和知情同意独特地表现为地方性的伦理困境。警告购买者的原则(让买方当心)对于参与焦点小组研究的人可能是一个更有用的工具:也就是说,让研究人员,参与者和道德委员会当心,唯一可以给予关注的道德保证小组参与者认为,没有道德保证。这些道德困境在文献中还没有得到足够的认识,如果进行讨论,通常会在焦点小组主持人小组讨论的序言中加以解决。本文鼓励强制使用参与者信息表,该信息表应足够详细,以引起参与者的积极同意。这里的充分意思是指必须事先充分告知参与者这些地方性的道德困境,以使他们同意对任何随之而来的伤害承担责任。焦点组主持人不是其唯一的保护者。

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